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Author Topic: The Most Important Thing I have Learned  (Read 8906 times)
Stacy Without An E
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God's Action Figure

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« Reply #50 on: September 01, 2009, 02:28:37 PM »

I've learned that whenever someone asks me how I feel,I  simply say, "Fine."  I can't take that look of eyes glazing over when I tell them how I'm actually feeling.

I've learned that when women learn of my condition, I'm considered "damaged goods."

I've learned that hope shrinks the longer you have to wait for a kidney transplant.

I've learned that "broke" and "Dialysis" go hand in hand.

I've learned that no matter how bad you think you have it, someone always has it worse.

I've learned the only people I can truly depend on are my family.  "Friends" evaporate the longer you endure treatment.

I've learned that I have a fetish for beautiful women in scrubs.
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Stacy Without An E

1st Kidney Transplant: May 1983
2nd Kidney Transplant: January 1996
3rd Kidney Transplant: Any day now.

The Adventures of Stacy Without An E
stacywithoutane.blogspot.com

Dialysis.  Two needles.  One machine.  No compassion.
RightSide
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« Reply #51 on: September 01, 2009, 07:53:38 PM »

I've learned how many things are NOT covered by medical insurance in the U.S.
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Des
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« Reply #52 on: September 02, 2009, 12:28:22 AM »

I have learned that friends DO dissapear..... :(   we are just growing apart.... we really don't have anything in comon any more.
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
KICKSTART
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In da House.

« Reply #53 on: September 02, 2009, 09:13:13 AM »

I have learnt my IHD family is always there to help me through ! xxx
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #54 on: September 02, 2009, 11:04:59 AM »


I have learned that there is no "right" answer for everything and everyone.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile

« Reply #55 on: September 02, 2009, 11:59:24 AM »

So many things really but especially to try and be gentle with others, even when we don't feel like it because we never ever know what struggles people are facing.    Even though I KNOW this I'm too often guilty of forgetting in the moment. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
twirl
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« Reply #56 on: September 02, 2009, 12:32:30 PM »

time waits for no person
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