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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: General Discussion
I really hate dialysis
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Topic: I really hate dialysis (Read 9631 times)
BeachLover
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Re: I really hate dialysis
«
Reply #50 on:
August 21, 2009, 03:04:13 PM »
I haven't started yet but I know it's going to be really tough. I cant even stand going to the neph as much as I have to, for all the blood work, etc.
I am on a bi weekly schedule for Aranesp. It seems I am always in that office. The doctor needs to see me at least once a month and he always has some test he wants me to do. It seems there is no relief and I would LOVE to be left alone for a few days.
If this bothers and depresses me, how on earth will I ever be able to stand dialysis, maybe for 5 hours at a time?
I have thought about it and figured I could just try and remove myself emotionally and go through it without thinking. I don't know how that will work. LOL
I am beginning to have nasua most days and have to force myself to eat. I wonder how much longer i have to go.
I am in awe of all of you!
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dwcrawford
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Getting the heck out of town.
Re: I really hate dialysis
«
Reply #51 on:
August 21, 2009, 03:18:01 PM »
Beachlover, It is bad. But not as bad as we imagine it to be. There are ups and downs. The blood is disgusting but you can train your self not to look. Make friends with the really nice people and try getting rid of the nasty ones. (joke)
Logged
Come to think of it, nothing is funny anymore.
Nothing that I post here is intended for fact but rather for exploration into my personal thought processes. Any slight, use of words with multiple connotations or other percieved insults are totally unintended. I reserve my insults for private.
tyefly
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This will be me...... Next spring.... I earned it.
Re: I really hate dialysis
«
Reply #52 on:
August 21, 2009, 05:37:40 PM »
Kickstart are you going to get a fistula placed......
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
KICKSTART
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In da House.
Re: I really hate dialysis
«
Reply #53 on:
August 22, 2009, 07:54:27 AM »
Quote from: tyefly on August 21, 2009, 05:37:40 PM
Kickstart are you going to get a fistula placed......
Not if i can help it !
No seriously in time i will have one done and my pd cath taken out.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Brightsky69
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Re: I really hate dialysis
«
Reply #54 on:
August 22, 2009, 08:55:38 AM »
Kickstart I feel for you. I too would be feeling the same way if I had to go to hemo. Right now I am on PD and it's way way better than hemo in my book. Jail is a good way to describe hemo. I would have to give up so much if I had to do hemo.
I wish you could get a transplant.
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
KICKSTART
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Re: I really hate dialysis
«
Reply #55 on:
August 22, 2009, 10:51:25 AM »
Thanks Brightsky , i would go back to PD like a shot if i had a chance. I really do hate hemo. A transplant isnt an option to be honest because i dont have the support of my family , they think i can go in one day , have a transplant , home next day ..sorted/cured . This is what im up against !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
BeachLover
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Re: I really hate dialysis
«
Reply #56 on:
August 22, 2009, 10:55:51 AM »
I'm wondering whether dialysis will make me feel sick while I am doing it? I'm nauseas now and it will probably only get worse. I am sort of forcing myself to eat but I am losing weight.
It would seem to me that dislysis is a big thing for the body to get used to. How do you feel when you are on the machine? I am worried.
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nursewratchet
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"Either do it, or don't do it, don't try"
Re: I really hate dialysis
«
Reply #57 on:
August 22, 2009, 11:21:20 AM »
Quote from: Goofy on August 19, 2009, 05:50:03 PM
Twirl, you're joking, right?
Twirl is NOT joking. Her FA is a control freak. I tried to intervene.
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RN, Facility Administrator 2002 to present
RN, Staff Nurse 1996-2002
Vicki
dwcrawford
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Getting the heck out of town.
Re: I really hate dialysis
«
Reply #58 on:
August 22, 2009, 11:22:24 AM »
Beachlover, I'm sure you'll get as many different responses as their are responders. I doubt it is the same for your experience, whici will be unique. I do in center hemo and I was not sick at all when on the machine. Sometimes now I have a little nasuea but I take it with me from home (I've never liked eating breakfast and it kind of makes me sick). A little malox that they will give me straightens it out. I was sleepy for a long time (after sessions) ... not tired. Just sleepy. I did lose a good deal of weight right before dialysis but that was mostly all fluid. Did it with just lasix... and I don't really like food for the most part although I am not on the renal diet as of yet because of the labs. I think you will actually feel better once you start. I chose the hemo in center for some very personal and specific reasons. I had to do an analysis of ME to make that decision. It is right for me and wrong for m any others. They messed up my fistula a couple of time but I fixed it by yelling, screaming and cursing.
Logged
Come to think of it, nothing is funny anymore.
Nothing that I post here is intended for fact but rather for exploration into my personal thought processes. Any slight, use of words with multiple connotations or other percieved insults are totally unintended. I reserve my insults for private.
KICKSTART
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In da House.
Re: I really hate dialysis
«
Reply #59 on:
August 22, 2009, 12:50:26 PM »
Beachlover .. dont worry everyone is different , i dont want to worry you. I think its worse for me because i was doing PD for years before this , which although is everyday is a lot kinder to the system and i think my body got so used to it ,its now in shock at how quickly hemo does things to it ! Maybe its better for people who go straight to hemo? I never wanted to do hemo though, if its possible to like dialysis then i was happy on PD , i plodded along steadily on it with none of these side effects or headaches.
Logged
OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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