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Lucinda
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Life is great!

« on: July 28, 2009, 02:20:27 PM »

Hi everyone that I love and adore!!! 

Sorry I haven't been around much lately.  Life is full steam ahead.  I have been my usual accident prone self but bones are on the mend.  Still getting use to dialysis and my sister and I have been having a fine old time dealing with the legalities over my father's estate.  All these "girlfriends" have come out of the closet that we have never met or heard of.  We are just waiting for the long lost stepbrother or sister to show up! 

While I was doing my dialysis training I put my magazine on hold for a few months but we are now going live on September 1.  I was telling Richardmel that it has been so frustrating doing all the back section of the website and still not seeing any visuals for the homepage.  It reminds me of when I was a school and my parents made me do the content for a project first before they would let me do the cover page of the project. I  can't wait to see how the homepage looks.

Anyhow, it has been a very expensive long haul to get it this far but now there is light at the end of the tunnel.  The first event we are going to sponsor is for DELA.  DELA is Dialysis Escape Line Australia and they are having an event on September 26 which we are the major sponsor for.  So that confirms it.  The business is now up and running.

Doing dialysis at home is great.  It fits in with me rather than the other way around.  Sometimes though it would be nice to have someone set up my machine and do my needles for me and clean up afterwards.  Over here,(Oz) as many of you would know, they encourage you to totally handle your treatments on your own.  Paul goes away now a lot and I have no dramas doing dialysis on my own.  Not nervous now to get up and pick up my lines and cross the room to turn off the light or get something that I forgot to put on my nightstand.  I feel pretty confident with it all now.

Other than busting to get back to the gym when this ankle mends, everything is pretty good.  My blood pressure is up since I haven't been exercising so I am on another med for that which is still struggling to keep it down but all things considered, life is pretty darn good right now.

Anyhow, I am going to take a couple of hours to catch up with everyone this morning.  I have had a quick read and answered a few posts.  Great to see everyone is in fighting form. For those of you having a bad time at the moment with your clinic, frustrations with your situation or not feeling too great, I send you all the love in the world and promise that "this too will pass".  Kidney disease affects so much of our body's functions, you can't possibly expect to feel brilliant all of the time.  Fantastic news about Wattle.  I hope all of you who want a transplant get that gift in the not to distant future.  Personally, I don't want a transplant - well for now anyhow.  I just want to be in control, get into a routine and live my life as normally as possible. And when it comes to summer that means living on the beach and in the sun.  If I had a transplant I couldn't give up the sun so I would just be a walking, talking melanoma!

I can't promise I will be around much between now and the launch of the magazine but I will definitely drop in whenever I can.   Take care everyone and you are always in my thoughts.  Lots of love, Cindy.  :grouphug;


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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: July 28, 2009, 02:57:20 PM »

Nice update Lucinda! I hope all goes well with the magazine! Good luck!  :cheer:
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile

« Reply #2 on: July 28, 2009, 03:20:42 PM »

Nice to catch up with your news Cindy.  I'm sporting a stupid broken ankle myself at the moment, courtesy of a wayward pebble that ended up rolling my foot over on its side.  I'm feeling really really well, other than this latest frustration. 
Glad to hear about how confident you feel with doing D at home and also nice news about the business.   :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Romona
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« Reply #3 on: July 28, 2009, 03:52:11 PM »

 :waving; Nice to hear from you!
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thegrammalady
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« Reply #4 on: July 28, 2009, 04:48:29 PM »

great to hear from you and know that things are going well.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
willieandwinnie
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« Reply #5 on: July 28, 2009, 05:37:51 PM »

 :waving; Cindy, it was wonderful reading your posts and hearing how things are going for you. Keep us posted on your magazine.  :cuddle;


MONREIN: When did you break your ankle, I don't remember reading anything about that.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Chris
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« Reply #6 on: July 28, 2009, 09:03:56 PM »

 :waving; Lucinda, nice to see you here again.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kitkatz
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« Reply #7 on: July 28, 2009, 09:36:04 PM »

Lucinda great to hear from you again!  I hope you keep a space for me when I come to Australia in a year or two.  :rofl; :bandance;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Zach
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"Still crazy after all these years."

« Reply #8 on: July 28, 2009, 09:43:52 PM »

 :-*
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Lucinda
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Life is great!

« Reply #9 on: July 29, 2009, 02:50:28 AM »

Lucinda great to hear from you again!  I hope you keep a space for me when I come to Australia in a year or two.  :rofl; :bandance;

Hey Kit.  You can stay with us and I can hook you up on Merlin (my machine).  That way it won't cost you a penny and you can have a really nice holdiay. x
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Lucinda
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Life is great!

« Reply #10 on: July 29, 2009, 02:58:41 AM »

Hey Gail....What is it with ankles?  I didn't even know my was broken until a couple of days later.  It was swollen, but not badly and I thought it was gout.  It is just annoying more than anything getting around.  Glad to hear you are feeling so well!!  xxx
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RichardMEL
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« Reply #11 on: July 29, 2009, 05:42:23 AM »

Great update Cindy... great to hear from you :)

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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
paul.karen
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« Reply #12 on: July 29, 2009, 05:50:09 AM »

Glad to hear from you.
Sorry to hear about your ankle, You as well Monrein.  Hope you both get well fast.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
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