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Author Topic: Back from the hospital  (Read 3075 times)
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« on: July 31, 2009, 02:29:41 PM »
I just got back from a week in the hospital/ My PD stopped working. I got my tanchoff catheter removed, got a permacath, and got an AV fistula put in. It was not a fun week... just pain. Started hemodialysis again. I hope it will start getting better soon... the hemo is going poorly so far. I just get nauseated when I do my run.
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
Wenchie58
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Always carrying the big silly grin!
« Reply #1 on: July 31, 2009, 02:38:33 PM »
Awwww Mikey.  Glad you're back among us.  Sorry you're having a rough time.  Hope you're ship shape soon!!!  :cuddle;
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
rose1999
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« Reply #2 on: July 31, 2009, 10:44:19 PM »
 :grouphug; hope you'll soon feel better.
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willowtreewren
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My two beautifull granddaughters

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« Reply #3 on: August 01, 2009, 03:12:44 AM »
 :grouphug; :grouphug;

Changes are not fun, especially when involving a hospital stay.  :thumbdown;

Hope things start going better soon and you adjust to hemo.

Thinking about you.

 :flower;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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Might as well smile
« Reply #4 on: August 01, 2009, 04:45:04 AM »
Not nice at all Mikey.  I'm glad you're home and now I want the runs to get easier for you.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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« Reply #5 on: August 01, 2009, 12:08:31 PM »
Hey Mikey!
I hope things improve for you soon. Take care!  :cuddle; :cuddle; :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #6 on: August 01, 2009, 05:37:20 PM »
Same thing happened to me a few months after I started pd - but I was lucky in that they just had to reposition the catheter, not take it out.  How long till they replace it?  Thinking of you.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
paris
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« Reply #7 on: August 01, 2009, 05:39:18 PM »
Mickey, you have been having a rough time lately.  Hope things start improving.  We miss you when you are not here.   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
del
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del and willowtreewren meet
« Reply #8 on: August 01, 2009, 05:46:18 PM »
Hope your hemo treatments improve soon.  :grouphug;
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Don't take your organs to heaven.  Heaven knows we need them here.
twirl
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« Reply #9 on: August 01, 2009, 06:29:23 PM »
Mikey
I have missed you and pm me your address
and how is King Leon
hope you are better
where you doing PD, I can not remember
pm me now
cheryl
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mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #10 on: August 01, 2009, 07:38:33 PM »
I spoke with the doctor about my nausea and she recommended trying Xanax. I used it today and did not have any nausea. I just had a very slight headache that went away later. It was a really good run. Twirl, yes i was on PD. I don't know if I will go back to it... I have had many infections. I think I will try hemo for a while.
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
twirl
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« Reply #11 on: August 02, 2009, 06:54:47 AM »
I did not get my pm
and stay with hemo  for now
I think you will do better although I know nothing much about pd
but you will be seen by a doctor more often --- won't you
please take care of yourself and our KING
cheryl
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MandaMe1986
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« Reply #12 on: August 02, 2009, 08:01:14 AM »
Im sorry to hear you are having such a hard time. You have been having a  hard time lately.   I am with Cheryl stay with Hemo for now.  That would be my advice.  Take care of yourself.  :cuddle;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
kitkatz
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« Reply #13 on: August 06, 2009, 08:47:06 PM »
I hope you feel better soon!
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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