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Author Topic: Trouble in Fisutla Land...  (Read 2003 times)
maritza0486
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"Pple cant do evrythin but every1 can do somethin"

« on: July 16, 2009, 06:23:25 PM »

 :(Well...I have had my AV Fistula for 3 1/2 months at this point. It is my third one in 5 years. The first one lasted me almost a year and stopped working. Luckily at that time I did not need dialysis and went straight to a transplant. The second one was done a month before this current one but that one stopped working in a matter of 3 weeks. The scar has yet to fully heal. So now I have 3 scars on my arms. One on my lef arm, by my wrist, one on my right arm a little farther from my wrist, and the third and current one closer to the elbow area. I spoke to my surgeon today and he wants to see me tomorrow.
Now, last week on Wednesday, I went to an Access Center in the Bronx and my fistula was "ballooned" since it is taking such a long time to fully develop/mature. The surgeon felt that the decreased flow in my fistula could be due to the "ballooning". Makes sense but at least there is still some kind of flow occuring. I hope it can be saved because I could not stand to have to do a 4th one. My arms are already in movement and pretty much healed and most importantly, not really in pain. I guess in the end, regardless of what happens, I will do whatever I must do to have my life saved. I do not want to leave this world just yet. I am only 23 and have so many plans and goals for my future. I have an Associates Degree and am going for my Bachelor's Degree. I want to be an elementary school teacher because I have this really great love for children and really hope to have at least one someday. I am a good girl. I do not drink or smoke or hang with bad influences. I do not go to clubs or bars or lounges or anything like that to party. I am a homebody. I like to read, listen to music, spend time with my family, and just enjoy my life as that. I start school at the end of August and hope all goes well before then. I know I am suddenly blabbing about such nonsense but we all know it is hard not to do so when so much is at stake.
Anyway, I will let you guys know what the deal is tomorrow after I speak with my surgeon and he sees my fistula face-to-face...or shall I say, face-to-arm (LOL). So, I hope you all have a blessed night and a wonderful weekend in case I do not post anything else from this point on. Thanks for reading.  :pics;
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~Diagnosed with End Stage Renal Disease at age 17 (a month before turning 18)
~Kidney Transplant from sister February 10, 2005
~Transplant failed December 2008
~Began Dialysis for my very first time May 6, 2009
~Put on Transplant List on June 5, 2009
~Miraculous phone call from Montefiore about potential kidney August 31, 2009
~2nd Kidney Transplant!!! September 1, 2009
~Sep. 6, 2009 Creatnine 1.1 ---- Sep. 11, 2009 Creatnine 1.5 --- Sep. 18, 2009 Creatnine 1.3
~May 14, 2010 -- Creatnine 1.0!!!! I am healthier than ever. 8 months since 2nd transplant!!
willieandwinnie
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« Reply #1 on: July 16, 2009, 06:26:44 PM »

Oh good Lord maritza. Please let us know what you find out tomorrow. We will be thinking of you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
YLGuy
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« Reply #2 on: July 17, 2009, 12:40:06 AM »

Bronx: Yankees fan?  Well just to let you know you have a Mets fan pulling for you. 
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Deanne
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« Reply #3 on: July 17, 2009, 12:41:56 PM »

Did it go ok today? I'm sorry you need to go through so much.  :flower;
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
paris
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« Reply #4 on: July 17, 2009, 02:15:26 PM »

You have to let us know how you are.  We are a bunch of worries!   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
maritza0486
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"Pple cant do evrythin but every1 can do somethin"

« Reply #5 on: July 17, 2009, 03:06:48 PM »

Ok so I woke up this morning and miraculously my fistula was working strong. I was so happy but I went to see my surgeon anyway and he said it looked good but does not want my fistula "ballooned" anymore. I am so happy. Anyway, I do not live in the Bronx but I go there as far as hospitals go. I do not watch sports either so I am neither a yankees fan nor a mets fan but for good news...my dad is a Mets fan. :2thumbsup; Thanks for the support guys. I truly appreciate it so very much.  :thx;
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~Diagnosed with End Stage Renal Disease at age 17 (a month before turning 18)
~Kidney Transplant from sister February 10, 2005
~Transplant failed December 2008
~Began Dialysis for my very first time May 6, 2009
~Put on Transplant List on June 5, 2009
~Miraculous phone call from Montefiore about potential kidney August 31, 2009
~2nd Kidney Transplant!!! September 1, 2009
~Sep. 6, 2009 Creatnine 1.1 ---- Sep. 11, 2009 Creatnine 1.5 --- Sep. 18, 2009 Creatnine 1.3
~May 14, 2010 -- Creatnine 1.0!!!! I am healthier than ever. 8 months since 2nd transplant!!
YLGuy
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« Reply #6 on: July 17, 2009, 05:10:02 PM »

Great news!!! Smart man, your father   :beer1;
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boxman55
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« Reply #7 on: July 17, 2009, 08:20:01 PM »

Good news hang tough...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
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