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Author Topic: Can you tell me if  (Read 1594 times)
idahospud
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« on: June 24, 2009, 12:46:09 AM »
 HI all I'm back for a bit . I'm not Sherie if this is a vent or a queston . But I know Ill get an answer here I finely got my fistulas in but Thar not move to the serfs yet. I see the surgeon 7\1\09 to see about the surgery to do that . Here is my queston now last month my labs where GFR15 creating 3.2 now in a month my labs have gone to GFR8 creating 6.0 . Can  it drop that fast . I don't fell that bad I'm tired and  :puke; but I have crohns as well and fell :puke; at times from that . DR wants to pout a Catha in Thursday if labs art better and start the big -D next week . It just wasn't sops to happen this fast . wons thy Brena the fistula up how long tell i can us it ? Its in both my upper arms. the surgeon is going to graft them together soon i hope. THanks for all your help Carol
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Des
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« Reply #1 on: June 24, 2009, 12:48:39 AM »
That was a fast drop...
Yes it can happen.....the kidneys are taking alot of strain (spellcheck) The sicker they get the harder they have to work...

Good luck on starting dialysis........

 
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: June 24, 2009, 06:12:14 AM »
Carol,
My husband was very steady with his creatinine and GFR for a long time then it just tanked very quickly. Even though we knew dialysis was in the future, in many ways we weren't emotionally prepared when we had to start "right now!"

I'm sending good wishes.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MandaMe1986
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« Reply #3 on: June 24, 2009, 08:31:26 AM »
It can happen good luck :cuddle;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #4 on: June 24, 2009, 04:16:25 PM »
Thinking of you.  My levels all dropped (or rose) from OK to needing dialysis within the space of a couple of weeks.  One week they were telling me not to worry, but within a couple of weeks I'd started dialysis.  So, yes, I'm sorry, it can definitely happen that quickly.  Good luck.  The thought of it is worse than the reality (mostly).  Have they talked to you about PD instead of haemo?
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
idahospud
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« Reply #5 on: June 24, 2009, 11:59:57 PM »
Thank you all for your support . yes thy have tack t to me about PD but i don't have a nu ff room with my PKD  kidneys. I'm so glad i have you all here at IHD  :thx; Carol
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Des
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« Reply #6 on: June 25, 2009, 12:15:56 AM »
PD for PKD kidneys .....?
I have PKD and the doc says it is not a problem to do PD as the fluid goes between layers on the "outside" of you abdominal area.... The kidneys are squashed on the inside...

Good luck and keep us posted
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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