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Author Topic: Hello, I am back!!  (Read 4931 times)
BASSMAN
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« on: May 27, 2009, 06:41:09 PM »
Not that I really expect anyone to remember me.  It has been over a year since my last post.  My creatinine is 3.5 and my GFR is now at 20, and my neph is sending my paperwork in to be placed on the transplant list.  I am feeling really tired a good part of the time.

I have more questions, fears and rants but I will just say"Hello!" for now.  I don't expect anyone to kill the fatted calf upon my return, but I do hope you all forgive me for not being an active member.  I suppose that the closer I get to ESRF and the worse I start to feel,  I will become more active.

 :waving;
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
MandaMe1986
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« Reply #1 on: May 27, 2009, 06:48:22 PM »
Hello well I don't know who you are, and you have no idea who I am. But you becoming an active member is good fun.  I'm 23 and on a lot. See you around.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
BASSMAN
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« Reply #2 on: May 27, 2009, 06:56:11 PM »
Thanks MandaMe1986!!!
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
paris
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« Reply #3 on: May 27, 2009, 06:57:53 PM »
Once a member, you are here for life!!  Nice to see you back.  I hope this site can help as you continue your journey toward a transplant.   Good to see you again   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
BASSMAN
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« Reply #4 on: May 27, 2009, 07:01:43 PM »
Thanks paris,

I do remember you.  I am glad you guys are a forgiving bunch.  I will try to give back instead of just taking. :thx;
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
angellady07
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« Reply #5 on: May 27, 2009, 07:47:29 PM »
Welcome back Bassman. :waving;
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jbeany
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Cattitude
« Reply #6 on: May 27, 2009, 08:22:25 PM »
Nice to hear from you again, Bassman.  Hope the transplant stuff goes well.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #7 on: May 27, 2009, 08:37:54 PM »
Nice to meet you.  I don't think anyone minds people coming and going.  This site is always here if you need it.  Welcome again!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #8 on: May 27, 2009, 10:14:29 PM »

Hey Bassman,
Good to "see"you again. I remember when you quit smoking. How did that work out?
Looking forward to more of your posts!
 :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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Going through life tied to a chair!
« Reply #9 on: May 27, 2009, 10:39:38 PM »
Bring in the Fattened Calf ----- and a bottle of binders!

Glad you are back!    :yahoo;
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rose1999
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« Reply #10 on: May 27, 2009, 11:03:00 PM »
I remember you, I always wondered if I should say bass (as in guitar) or bass (as in fish!) and I  can't remember now which it was!!  Anyway welcome back, hope you stay around.
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Joe Paul
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« Reply #11 on: May 28, 2009, 12:13:39 AM »
Welcome back Bassman.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
monrein
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Might as well smile
« Reply #12 on: May 28, 2009, 10:56:29 AM »
Welcome back. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #13 on: May 28, 2009, 11:07:22 AM »
 :welcomesign; Back. We are always glad to see folks return for whatever reason.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
BASSMAN
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« Reply #14 on: May 28, 2009, 11:37:27 AM »
Quote from: okarol on May 27, 2009, 10:14:29 PM

Hey Bassman,
Good to "see"you again. I remember when you quit smoking. How did that work out?
Looking forward to more of your posts!
 :waving;

I am free of Nicotine.  I still want a cigarette once in a while but most days I don't even think about them anymore.

Thanks for the welcome back!
Logged
Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
BASSMAN
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« Reply #15 on: May 28, 2009, 11:39:31 AM »
Quote from: rose1999 on May 27, 2009, 11:03:00 PM
I remember you, I always wondered if I should say bass (as in guitar) or bass (as in fish!) and I  can't remember now which it was!!  Anyway welcome back, hope you stay around.

Either one will work as I play guitar and bass guitar and also bass fish. 

Thanks for the welcome back!!
Logged
Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
BASSMAN
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« Reply #16 on: May 28, 2009, 11:40:18 AM »
Thanks to all of you for being so nice!
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
rose1999
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« Reply #17 on: May 28, 2009, 12:52:35 PM »
Quote from: BASSMAN on May 28, 2009, 11:39:31 AM
Quote from: rose1999 on May 27, 2009, 11:03:00 PM
I remember you, I always wondered if I should say bass (as in guitar) or bass (as in fish!) and I  can't remember now which it was!!  Anyway welcome back, hope you stay around.

Either one will work as I play guitar and bass guitar and also bass fish. 

Thanks for the welcome back!!

I'll go for bass as in guitar then  :2thumbsup; And I'll sing the 'Mr Bassman' song in my head every time I see you post ;)
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G-Ma
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« Reply #18 on: May 28, 2009, 03:44:45 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #19 on: May 28, 2009, 07:16:59 PM »
Wellcome back......  I am pretty new on here also.....  as my GFR has dropped in the past three months.....   So I am here to learn as much as possible..... I think the more we know the better control we will have ...or at least I think so.....LOL...... 

     
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Romona
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« Reply #20 on: May 29, 2009, 12:56:24 PM »
Glad to see you! :)
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