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Author Topic: A rough few days  (Read 6676 times)
Hemodoc
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« Reply #25 on: May 22, 2008, 02:59:54 PM »
Dear monrein,

Sorry to hear of your troubles.  As a physician, I myself always insist on the most skilled people for any procedure I have to undergo since many outcomes are based on the skill of the surgeon.  I understand that the students need to learn since I went through the learning process myself, yet, for a dialysis patient, once you have burned the bridges of your access, you have limited options.  I would not recommend vasc cath placement by any one that does not have a lot of experience with the procedure.  We simply have a limited number of vascular access sites.  The students have plenty of opportunities in placing central lines on other patients in the ICU and in other situations where access is needed for a few days, weeks or months.  However, renal patients may need these access sites for years.  Sorry, med students, but your time with come with other patients, leave the renal folks to those that already have much experience.  Just my opinion from both sides of the street.

Peter
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Peter Laird, MD
www.hemodoc.info
Diagnosed with IgA nephropathy 1998
Incenter Dialysis starting 2-1-2007
Self Care in Center from 4-15-2008 to 6-2-2009
Started  Home Care with NxStage 6-2-2009 (Qb 370, FF 45%, 40L)

All clinical and treatment related issues discussed on this forum are for informational purposes only.  You must always secure your own medical teams approval for all treatment options before applying any discussions on this site to your own circumstances.
Lori1851
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This is me Lori , Dustin's mom
« Reply #26 on: May 22, 2008, 04:58:36 PM »
Monrein,
I hope things are better for you real soon hon!!!

Lori/Indiana
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kidney4traci
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« Reply #27 on: May 22, 2008, 05:40:26 PM »
Just to answer Kellyt - they didn't believe me that it was really hurting me, since it was my very first time ever on dialysis.  May have been the same for Mo.  ??
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
monrein
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Might as well smile
« Reply #28 on: May 22, 2008, 07:03:24 PM »
GOOD NEWS.

First of all, thank you all for your messages and your support.  They were all really appreciated.   :thx;

Secondly, everything went well this evening.  My pump speed was just 250 because we're working up gradually but flow was great and NO alarms.  So the new neck line is working well.

No headache, no crashing, I feel (almost) on top of  the world.  My nurse was terrific...no complaints.

I still don't like neck lines.  I can't wait for the fistula to mature and it is looking good.

The first one didn't work because it was TOO LONG.    :Kit n Stik;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
JasonEb
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« Reply #29 on: May 22, 2008, 08:48:22 PM »
Next time you have a procedure, ask the person doing it for a dollar.  Tell them that if the procedure goes well and there are no complications for a month, you'll return the dollar to them.

~Jason E.
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thegrammalady
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« Reply #30 on: May 22, 2008, 11:55:50 PM »
glad to hear things went well this time. i make it a standard practice that no on who is "learning" practices on me. i don't care who you are. i once held up my daughters ear tube surgery because i refused to let a nurse practitioner do her anesthesia. they had to reschedule everything. toughies! especially since i had asked if a doctor was going to do it when i set the surgery up. apparently the nurse just ignored me.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

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For You Are Crunchy And Taste Good With Ketchup
mikey07840
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« Reply #31 on: May 23, 2008, 12:03:10 AM »
Sorry you had a bad time of it. I hope things get much better very soon for you.
 :grouphug; Hugs, love and prayers to you from me :)
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
Bajanne
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« Reply #32 on: May 23, 2008, 06:47:40 AM »
Glad to hear that this seems more comfortable.  Hope everything goes super well for you.  Mes meilleurs souhaits!!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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