Survey Results

[pdpatty]

PCS
My PCS  score is 27.7.   
The average PCS score for others on dialysis in the U>S> who are female,about your age,and don't have diabetes is 37. Your score means that you may be more likely to need hospital           care than most people on dialysis. And,you may not live as long as most people like you on dialysis.



Now that is a good thing to be told,results of questions asked by a social worker.

 

[G-Ma]

orrrrr giving information like this out could result in """death""" of a social worker     

[kitkatz]

Yeah I took the same test from the social worker.  What does it know anyway? I found all of the results very generic and not fitting in with what I do in my life.

[monrein]

Social workers who simply compile scores from these types of questionnaires and hand them back to patients without any kind of more individualized, in-depth conversations about real people's real lives, really ought to switch careers.  Data entry clerk might be a good place to start.  Sheer insanity.

P.S.  In my second career I worked as a family therapist/social worker with teenagers (12-18) and their families for about 13 years. 

[jbeany]

Let me guess - you filled out the questionnaire honestly, giving real responses to all the questions, even the mental health ones.  I did the same, and got the same crappy results.  Great.  So now I not only feel crappy while I'm coping with my illness, I also get to feel crappy that everyone else supposedly is coping with it better than I am!

Personally, I think whoever compiled the results had a whole lot of people who were afraid to put down how they really feel.  It's a survey with those dorky subjective "rate how you feel" questions anyhow.  Plus, I skipped a few - so how did that affect my score?  (How does dialysis affect your sex life?  I can't answer that - I don't have one for it to affect!  And if I did have one, I wouldn't be discussing it with someone I barely know - like a social worker I see for 10 minutes, once a month!)

So a big, fat PBBBBLLLLLTTTHH! raspberry to the PCS survey!

[monrein]

Is it OK to say that you refuse to participate?  Many many years ago I had to fill out some kind of questionnaire but the social worker thought it was a bit of a stupid thing herself and said she didn't see what it accomplished.  I did it basically because I was bored, never got any results back and never gave it a thought.

[RightSide]

Does everybody on dialysis get to fill out one of these?

My social worker never even mentioned it to me.

Does the questionnaire exist online somewhere?

[BigSky]

I believe this survey came down the pipe from Medicare.  My understanding was some company complied all the surveys and came up with the results and to how people scored basing it in relation to what others who filled them out said.

They were worthless and no doubt a waste of probably tens of thousands of dollars if not more.

It was nothing more than a  bunch of generic answers and pandering bs suggestions on what to do IMO.

[jbeany]

I filled mine out right after I found out I had to go back to in-center, and quit doing home hemo.  Part of the response/suggestions I got were all about switching to home hemo to give me more control, since I was frustrated with my lack of options.  Duh!

[bette1]

Next time a social worker comes by with one of these dumb surveys I suggest the best coping skill is faking sleep. 

[kitkatz]

Oh go ahead fill the dumb survey out.  She probably gets paid by the survey!

[Stoday]

You have to be careful with surveys. Find out what they are for before filling 'em in.

Years ago when I was young and full of energy, the company I worked for got taken over by a US company (I'm in the UK). One of the first things they did was to send round an aptitude test.

This test had a note in bold saying you shouldn't cheat because it was cheat proof  (translation — they can't make it cheat proof so they try to dissuade you from cheating). I cheated by adopting the persona of a go-getting boss type. Bad move! I got called up to the department head, who said I was the best management potential of the lot and I was to be fast-tracked on the management stream. Got sent to lots of boring courses like how to kick ass, how to give staff KPAs (can't remember what they were). In short I finished up with a high-powered job I didn't like.

On second thoughts, perhaps cheating was considered a desireable attribute for the job...