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Author Topic: New Member Betty  (Read 3119 times)
BETTY55111
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« on: March 03, 2009, 05:54:38 PM »
Hello Everyone,
My name is Betty and I have had CKF for years. Last year my Nepthrologist told me that I  my GFR was 16 and I was looking at dialysis or a transplant SOON. I have twin granddaughters  22/yO and a son that is a match and willing to give me a kidney. Well, my lab results changed and every month the GFR was getting higher and higher to a 24 and I was feeling fine.
Then 2 months ago it dropped to  16 and I feel nauseous and short of breath some of the time.
I will be going on PD pretty soon. The catheter will be put in on March 11.
I am glad that I found this group so that I can learn something about what is in store for me.
Betty :shy;
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willieandwinnie
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« Reply #1 on: March 03, 2009, 06:19:57 PM »
:welcomesign; Betty. So glad you found us and yes, there is a lot to learn and we are a great source for your information and support. We love people that get tested to be donors. Please post often and keep us updated on the transplant process.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
G-Ma
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« Reply #2 on: March 03, 2009, 06:21:16 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Wattle
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« Reply #3 on: March 03, 2009, 06:41:19 PM »
 :waving;  Welcome Betty. Good luck with PD.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Joe Paul
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« Reply #4 on: March 04, 2009, 12:01:04 AM »
Welcome Betty, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
boxman55
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« Reply #5 on: March 04, 2009, 05:16:20 AM »
Welcome Betty, Glad you found us. We have a good amount of PD info here on the site. Just use the search for some good help. Please post often and again welcome

Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
peleroja
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I have 16 hats, all the same style!
« Reply #6 on: March 04, 2009, 09:02:32 AM »
Welcome, Betty.  This is a great place for information.  Come on back and post often.  Good luck with your new catheter (just one more week).
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paul.karen
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« Reply #7 on: March 04, 2009, 09:09:48 AM »
:waving; Betty.

If possable get the transplant before starting dialysis. But if your neph thinks it is time and you feel it is time be as ready as you can be.
I see my neph today. And i may also be getting my PD line in the near future.  Or he may say see you in a couple months :waiting;..

Glad you found us and hope to see you on many of the threads.
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Bub
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« Reply #8 on: March 04, 2009, 01:28:53 PM »
Glad you are here!  I was speed reading your post and had to go back and reread???? You said your GFR was 16 and I though you had said you were 16 years old.  I was thinking that poor girl.  Her kidney disease has been really rough on her! This is a friendly place so enjoy your time spent here!
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Tinah1968
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ME
« Reply #9 on: March 05, 2009, 10:08:44 AM »
 :welcomesign; Hi Betty
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
TeenHatesDialysis
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WWW
« Reply #10 on: March 05, 2009, 05:39:21 PM »
 :welcomesign; Betty,

Sorry that you have CKF, but great news that your son is a match and wants to donate a kidney!  Great kid! :2thumbsup; I am also new to the group with one teen daughter currently on dialysis and another with CKD, moving toward dialysis in the next year.  Lots of great info and support here.  Good luck to you.
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
BETTY55111
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« Reply #11 on: March 05, 2009, 06:12:56 PM »
Thanks to all for the warm welcome :grouphug; I have learned so much already from reading all the post. I am feeling better about all this already,
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Wenchie58
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Always carrying the big silly grin!
« Reply #12 on: March 07, 2009, 07:36:57 AM »
 :welcomesign; Betty!  Enjoy the site.  There's plenty to see here.
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Zach
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"Still crazy after all these years."
« Reply #13 on: March 07, 2009, 08:16:23 AM »
Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
paris
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« Reply #14 on: March 07, 2009, 01:10:55 PM »
Welcome Betty.  We are glad you found us.   There are several members on PD and they will be glad to answer any questions you have.  We are all in this together and people here will understand what you are going through.  Looking forward to learning more of your story.  Post often.   :2thumbsup;






paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Dan.Larrabee
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Dialysis Dan
« Reply #15 on: March 10, 2009, 01:59:40 AM »
Hi Betty.  :waving;
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AKA Dialysis Dan
Feeling the best I can because of Home Hemo
Doing it the best way I can by making it Nocturnal
Sharing it to help everyone feel they best they can
www.youtube.com/dialysisdan
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #16 on: March 11, 2009, 02:10:23 AM »
Welcome to our community, Betty! It is great that you found us at this time.  IHD is tremendous when it comes to helping you prepare for dialysis.  That was my personal experience, and when I joined there wasn't even the tons of information that there is now (the site was only a month old), but the caring people I met here helped me through those first scary days.  You have found a genuine family here  :grouphug;  All you need to do is keep reading and keep posting. Let us know how it is going. The people here will be with you through whatever experiences you do through, all the way.
Looking forward to hearing more from you,




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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