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pam49
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« on: January 27, 2009, 06:08:48 AM »
 :cheer:  Hi my name is Pam.I am new to this web sight.I am 49 and have been doing dialysis since August 7 2008.I hate it.I am trying to get a transplant but my body has built up so many anti bodies.My blood is fighting everyones blood so far.2 of my sisters and 2 of my children have been tested.I have an adopted sister who is my match and she is going through testing now.Pray that it goes okay!
Dialysis wears me out.I am so tired on the days I have it.My doctor says that my body will get used to it.If the transplant doesn't work then I am going to do peritoneal.



Edited: thread moved to proper section: "Introduce yourself"  paris, Moderator
« Last Edit: January 27, 2009, 01:32:41 PM by paris » Logged
with God all things are possible!
Find beauty in all things
Wenchie58
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Always carrying the big silly grin!
« Reply #1 on: January 27, 2009, 06:15:31 AM »
Pam

   Welcome.  Check out the posts on IVIG treatments....a possibility to deal with those pesky anitbodies!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
monrein
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Might as well smile
« Reply #2 on: January 27, 2009, 07:23:01 AM »
 :welcomesign; Pam.  Lots of info and support here.  Nice that you joined us.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
peleroja
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I have 16 hats, all the same style!
« Reply #3 on: January 27, 2009, 01:08:57 PM »
Welcome aboard, Pam.  Tons of good information and shoulders to cry on.  Keep us posted on how you're doing.
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willieandwinnie
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« Reply #4 on: January 27, 2009, 01:33:55 PM »
:welcomesign; Pam. You found your perfect web site for information and support. Hope to hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
paris
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« Reply #5 on: January 27, 2009, 01:42:23 PM »
 :welcomesign;    Hi Pam,  We are so glad you found this great site.   There are several of us with the antibody problem.  Things they never tell you at the beginnng of this journey!!  I hope your sisters testing turns out to be a good match for you.  Are you going through the OSU transplant center?    Keep posting, ask lots of questions and enjoy being with people who really know what you are going through.   :grouphug;





paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Joe Paul
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« Reply #6 on: January 27, 2009, 01:47:39 PM »
Welcome Pam, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
G-Ma
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« Reply #7 on: January 27, 2009, 01:53:50 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Romona
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« Reply #8 on: January 27, 2009, 02:03:58 PM »
 :welcomesign;
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Normie
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Ellie
« Reply #9 on: January 27, 2009, 06:21:18 PM »
Hi Pam and  :welcomesign;

Glad you joined us.  Hope one of those tested will be the match you need.

Good luck,

Normie
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Normie

Kidney damage 4/22/07

Predialysis
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #10 on: January 27, 2009, 07:27:47 PM »
Welcome to our community, Pam!  You have done the right things by joining this wonderful group of caring and sharing people.  this is the place for information, for support, and even for fun!  More than just a web site, we are a real family  :grouphug;  so please take advantage of all this site has to offer.  Keep reading and keep posting
Looking forward to hearing from you.



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
jessup
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Gemma - the tucker monster
« Reply #11 on: January 28, 2009, 10:44:44 AM »
G'day and  :welcomesign;
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Zach
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"Still crazy after all these years."
« Reply #12 on: January 28, 2009, 10:48:29 AM »
Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
southyard
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« Reply #13 on: March 11, 2009, 05:04:32 PM »
i Hi Pam

I started dialysis the same day you did. I didn't want but was talked in to a 6 months trial.  While I still dont relish the 3 hrs  MWF  but it has gotten a bt more easier to do.  My family is fully supprtive of me shoul I amke decisio to quit now that the 6 months are up

I have cathetor on the left shoulder for the 2nd time.  !st one was pulled out on my 1st dialysis  not a nice event  They immeadiatly placed another which is working well. 

As of this date I still will continue due to the extreme support family has shown afetr I broke ahip in January That did not help my thoguths until after I arrived home  leaving rehab against drs wishes. Expect to be able drive again by Easter

Best of luck to you
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TeenHatesDialysis
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« Reply #14 on: March 13, 2009, 05:54:25 PM »
 :welcomesign; Pam!

My daughter is on dialysis, waiting for transplant. The first time they tested her dad's blood with her blood.....REJECTION.  It took me 3 months to get the insurance companies and labs to test again and what do know..............PERFECTION!!! Ummmm...No rejection second time around. Unfortunately, he has other health issues  ???. Request another test!!! It is always worth a try. You are very lucky to have so many people wanting to donate a kidney to you.  I am sure that you will get one soon.  :flower;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
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