mayala03
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« on: February 20, 2009, 11:40:31 AM » |
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 Hi All my name is Marcus and I am 22 going on 23 years old. I have Spina Bifida and was on dialysis and had a kidney transplant over 7 years ago. I am here to make new friends...offer advice to those who may be going through similar issues I may have once been through or currently going through. I also am open to meeting my possible better half. If anyone would like to chat or whatever dont be shy and hit me up via personal message. Take Care Everyone
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paul.karen
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« Reply #1 on: February 20, 2009, 11:44:14 AM » |
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Welcome to IHD Marcus.
Hope to see you on many of the threads. Nice of you to offer your experiences.
P&K
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Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
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Dan.Larrabee
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Posts: 150
Dialysis Dan
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« Reply #2 on: February 20, 2009, 11:53:00 AM » |
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 Marcus Edited: Fixed smiley error - paris, Moderator
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« Last Edit: March 07, 2009, 01:38:37 PM by paris »
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AKA Dialysis Dan Feeling the best I can because of Home Hemo Doing it the best way I can by making it Nocturnal Sharing it to help everyone feel they best they can www.youtube.com/dialysisdan |
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kellyt
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« Reply #3 on: February 20, 2009, 12:17:05 PM » |
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Welcome Marcus. It sounds like you will have lots to offer this site. I'm so glad you found us. I look forward to hearing more about you.
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1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  |
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Joe Paul
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« Reply #4 on: February 20, 2009, 12:56:55 PM » |
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Welcome Marcus, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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willieandwinnie
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« Reply #5 on: February 20, 2009, 01:11:56 PM » |
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 Marcus. Glad you found us and we are sure you have lots to offer our group. 
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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Zach
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« Reply #6 on: February 20, 2009, 02:19:58 PM » |
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It's good to have you here!  |
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.  I make films. Just the facts: 70.0 kgs. (about 154 lbs.) Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk Dialysate flow (Qd)=600; Blood pump speed(Qb)=315 Fresenius Optiflux-180 filter--without reuse Fresenius 2008T dialysis machine My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day. "Living a life, not an apology." |
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pelagia
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« Reply #7 on: February 20, 2009, 04:01:18 PM » |
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Marcus, your message makes me smile! If only I was 30 years younger and single.  |
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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monrein
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« Reply #9 on: February 20, 2009, 06:31:39 PM » |
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Hey Marcus. So glad you found us here. I look forward to hearing more abut your experiences.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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TeenHatesDialysis
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« Reply #10 on: February 20, 2009, 06:42:04 PM » |
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Marcus, I am also a newbie. I am so glad that you joined this board. I have a 14 (almost 15) year old daughter that has been on dialysis for 14 months and an 18 year old daughter whose kidneys are failing rapidly. I am guessing that you were 15 when you had your transplant. Do you have a system in place to remember to take your meds? I would love to hear about your experience as a teen going through dialysis and transplant.
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Susan, mom of Jaclyn, Deziree and Valerie www.cotaforjaclynp.comJaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07 Jaclyn started dialysis 1/2/08 Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA Deziree in denial Jaclyn listed 5/08 Deziree listed 1/09 ("Inactive") Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!) |
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mayala03
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Posts: 5
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« Reply #11 on: February 22, 2009, 02:09:51 PM » |
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 Thanks to everyone for such a warm welcome to the site. It is so cool to know that no matter what stage we are all at in our journey with our kidney issues (whether it be pre transplant or even post transplant) that a site like this has been made as a way for us to vent our issues and lend support to one another. I will soon be posting my transplant story, which will be in great detail, over on the "transplant stories" thread and will be titled simply "My Story". I look forward to meeting many many great people of all walks of life on here and want everyone to know that you can contact me via personal message or even feel free to use the email posted in my profile to contact me with questions or anything at all and I will gladly use my experience to shed some light and hope to those of you on here who may be dealing with kidney ailments or dialysis or even in the process of getting a transplant. This experience has truly changed me and my outlook on life and I look forward to helping others in their journey. May you all be well.
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boxman55
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« Reply #12 on: February 24, 2009, 10:27:40 AM » |
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Welcome to the site, Marcus. Glad you signed up. I look forward to your posts and maybe I will see you in the chat room.
Boxman,Moderator
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 "Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008 |
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Bajanne
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« Reply #13 on: February 24, 2009, 09:04:40 PM » |
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Welcome to our community, Marcus! So glad that you found us and decided to join us. So sorry that you had to deal with this renal challenge at such an early age. But I can feel the strength of your spirit. You are now a part of the IHD family  , a caring and sharing bunch. Please take advantage of all the site has to offer. Hope you get to meet your better half. Keep reading and keep posting. Looking forward to hearing from you. Bajanne, Moderator |
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family! |
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drinkboy
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« Reply #14 on: February 25, 2009, 06:45:44 AM » |
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Welcome aboard Marcus. We look forward to hearing more from you.
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cat
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« Reply #15 on: February 25, 2009, 07:50:26 AM » |
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Marcus, glad you are here!
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cat
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Ang
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« Reply #16 on: February 26, 2009, 03:32:11 PM » |
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marcus
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live life to the full and you won't die wondering
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cookie2008
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« Reply #17 on: February 26, 2009, 08:44:48 PM » |
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
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G-Ma
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« Reply #18 on: February 27, 2009, 10:52:40 PM » |
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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breezysummerday
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« Reply #19 on: March 04, 2009, 12:16:46 AM » |
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
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paris
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« Reply #20 on: March 07, 2009, 01:42:09 PM » |
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Hi Marcus. Your introduction was great and I will look in the transplant section to read more of your story. This is a very special site and we are a family. You will fit right in! You have a marvelous attitude and I am sure you can help many by sharing your lifes journey. Welcome! Post often!!
paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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MIbarra
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« Reply #21 on: March 07, 2009, 03:41:08 PM » |
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Hey there! Glad to hear of the successful transplant!  My hometown is El Paso! I miss it! |
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Cadaver transplant April 29, 2007
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Anthonysmom
Newbie
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Posts: 9
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« Reply #22 on: March 08, 2009, 02:42:29 PM » |
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Hi Marcus! I am glad you are here and am a newbie myself! I think this site will be helpful!! I am excited to get to know everyone!
Anthony's mom,
Tammy
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