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I Hate Dialysis Message Board
Introduction
Introduce Yourself
This is me
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Topic: This is me (Read 3019 times)
Dana Renee
Newbie
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Posts: 14
This is me
«
on:
February 15, 2009, 07:07:53 PM »
Well Im 25 years old and I first found out I had renal failure when I was 17 yrs old. I did dialysis for 6 months and somehow it all got better. I was free from dialysis until November of 2007, when I was 23 yrs old, Ive been on dialysis every since and Im training now to do PD.
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dialysisbiller
Jr. Member
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Posts: 83
Re: This is me
«
Reply #1 on:
February 15, 2009, 07:13:37 PM »
hey... welcome...i'm new too!
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swramsay
Full Member
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Gender:
Posts: 188
My son, Scotland, is my heartbeat.
Re: This is me
«
Reply #2 on:
February 15, 2009, 07:45:46 PM »
HI DANA!
You have an interesting story. I look forward to hearing more from you.
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JUST KEEP GOING.
March 2009: NxStage Pureflow Home Dialysis 5-6 x's week
Sept 2008: In center dialysis
Sept 2008: Left kidney removed (bladder cancer)
April 2006: Right kidney removed (bladder cancer). Chemo for lymph node mets.
April 2004: Bladder removed plus hysterectomy & neobladder made (bladder cancer)
Feb 1994: Original bladder cancer diagnosis & beginning of this journey
www.marykay.com/wramsay
Wallyz
Sr. Member
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Posts: 991
Re: This is me
«
Reply #3 on:
February 15, 2009, 07:51:47 PM »
welcome, Dana. What part of the world are you in?
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monrein
Member for Life
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Posts: 8323
Might as well smile
Re: This is me
«
Reply #4 on:
February 15, 2009, 08:22:44 PM »
Dana.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
Zach
Elite Member
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Posts: 4820
"Still crazy after all these years."
Re: This is me
«
Reply #5 on:
February 15, 2009, 08:59:45 PM »
It's good to have you here!
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.
I make films.
Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600; Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day.
"Living a life, not an apology."
Joe Paul
Elite Member
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Posts: 4841
Re: This is me
«
Reply #6 on:
February 15, 2009, 10:35:49 PM »
Welcome Dana, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Tinah1968
Elite Member
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Gender:
Posts: 1566
ME
Re: This is me
«
Reply #7 on:
February 16, 2009, 04:37:43 AM »
Hi and I agree with swramsay you do have an interesting story
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
Brightsky69
Sr. Member
Offline
Posts: 960
Re: This is me
«
Reply #8 on:
February 16, 2009, 04:52:28 AM »
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
boxman55
Elite Member
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Gender:
Posts: 3635
Re: This is me
«
Reply #9 on:
February 16, 2009, 05:00:07 AM »
Hi Dana, glad you found us. We have a ton of info on PD so please read up and post often
Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
willieandwinnie
Elite Member
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Posts: 3957
Re: This is me
«
Reply #10 on:
February 16, 2009, 05:52:08 AM »
Dana. You'll find all kinds of information and support here. Hope you post often and welcome to the family.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Dan.Larrabee
Full Member
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Posts: 150
Dialysis Dan
Re: This is me
«
Reply #11 on:
February 16, 2009, 10:54:39 PM »
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AKA Dialysis Dan
Feeling the best I can because of Home Hemo
Doing it the best way I can by making it Nocturnal
Sharing it to help everyone feel they best they can
www.youtube.com/dialysisdan
Ang
Elite Member
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Posts: 3314
Re: This is me
«
Reply #12 on:
February 18, 2009, 05:28:42 PM »
Dana
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live life to the full and you won't die wondering
Bajanne
Member for Life
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Gender:
Posts: 5337
Goofynina and Epoman - Gone But Not Forgotten
Re: This is me
«
Reply #13 on:
February 19, 2009, 10:13:04 AM »
Welcome to our community, Dana! So glad you found us and joined us. So sorry you had to deal with renal failure at such an early age. This is a great place for information, support when you need it, and even some fun. You see, this is much more than a website - it is a real family
So just keep reading and keep posting.
Looking forward to hearing from you
Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
jessup
Sr. Member
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Gender:
Posts: 773
Gemma - the tucker monster
Re: This is me
«
Reply #14 on:
February 21, 2009, 01:26:55 PM »
G'day and
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pelagia
Elite Member
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Posts: 2991
Re: This is me
«
Reply #15 on:
February 21, 2009, 04:23:46 PM »
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
TeenHatesDialysis
Full Member
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Gender:
Posts: 191
Re: This is me
«
Reply #16 on:
February 22, 2009, 03:48:14 PM »
I am a newbie, also. My youngest daughter (14 years old) is currently on hemo-dialysis (14 months - driving her crazy
). I hope that the PD works out well for you. This group is great support.
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Susan, mom of Jaclyn, Deziree and Valerie
www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
kellyt
Elite Member
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Gender:
Posts: 3840
Re: This is me
«
Reply #17 on:
February 22, 2009, 04:11:19 PM »
It's great to have you join our family! I look forward to hearing more about your journey. It sounds very interesting.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
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