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Author Topic: I had a baby!  (Read 10644 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #50 on: September 20, 2008, 12:31:09 PM »


No new posts from her but she's been updating her photos and she and the baby look great - http://picasaweb.google.com/jdhartzog
Photo below was taken last week I think.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
smile24x7
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Hemo Dialysis Since 04/07

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« Reply #51 on: September 20, 2008, 04:19:21 PM »

WOW!!! That is so spectacular!!  It is so encouraging to me too.  I am young and last year when I was diagnosed with ESRD the thought of having kids was out of the question.  But you are proof positive that it can happen!! Your daughter is a miracle.  I know you will treasure her forever.  God bless your family!!  :cheer:
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JDHartzog
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what to do w/little kids while in the hospital

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« Reply #52 on: September 28, 2008, 08:50:09 PM »

Sorry it's been so long since I posted - I started back to work and that's keeping me busy during my 3 hour treatments. :) 

Kaylynn is doing GREAT!  She is just about 15 lbs now, eating a lot of solid foods, sleeping through the night (11 hours! Yay!! :bandance;) giggling, rolling, playing and, as of tonight, creeping around on her tummy.  She has her Daddy wrapped around her little tiny finger and knows just how to get him to feel sorry for her and pick her up without shedding a single tear.  ;D  Mommy doesnt (always) fall for those tricks! lol.  Latest pics are at picasaweb.google.com/jdhartzog.

In dialysis news, I've been on NxStage for a full year now and I still love it.  There are days when I wish we could have a "normal" night several nights in a row, but it's still SO much better than in center.  (Those machines give me headaches and I have to take a nap after even going in everyday.)  Our routine is that we set up the machine before or right after dinner, then get Kaylynn put to bed for the night (around 7 or 7:30pm) then start my treatment.  Some nights when we're sluggish we might not get on til 8 or 9 though. 

I had a revision surgery on my fistula at the end of August and the surgeon put a custom modified (during the surgery!) illiac artery stent in my arm because the vessel was so large - large but squiggly (the fistula gram looked like a bunch of snakes!).  Now it's nice and straight and healed from the surgery.  I start learning to stick the thing tomorrow!  I'm excited and nervous at the same time.  I've stuck my arterial needle before and am pretty comfortable with that but the venus was harder and I never was able to get it in myself.  Now I have to learn how to stick throught the stent.  I haven't been able to get a clear answer on whether or not I will be allowed to have button holes with this modification so for now I will have to use the ladder tecnique. :-p

And that's about all that's going on lately. :)  Hope everyone else is doing well as can be expected too!

Jenn, Kevin and Kaylynn :)
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monrein
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Might as well smile

« Reply #53 on: September 28, 2008, 08:55:42 PM »

Great update.  Glad things are going so well.  I'll check out the photos.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #54 on: September 28, 2008, 11:11:47 PM »

 :flower; Thanks for checking in Jenn! You have a beautiful family!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
pelagia
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« Reply #55 on: September 29, 2008, 05:53:58 AM »

wonderful! :flower;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #56 on: February 06, 2009, 01:35:32 PM »


Baby Kaylynn is getting so big! Nine months old!

Here's Jenn and Kaylynn a few weeks ago
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Romona
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« Reply #57 on: February 06, 2009, 03:14:17 PM »

They both look great!
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #58 on: February 06, 2009, 05:06:22 PM »

This is so lovely.  Makes me feel all warm!   Thanks for updating us, Okarol!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
st789
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« Reply #59 on: February 06, 2009, 05:08:14 PM »

Congratulation.
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JDHartzog
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what to do w/little kids while in the hospital

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« Reply #60 on: February 06, 2009, 05:41:35 PM »

Okarol,  :thx; Thanks for posting an update!  I always forget. :) 

We are all doing great!  Kaylynn is 19 lbs, eating "big girl" table foods, crawling and starting to show some interest in walking!  She is such a wonderful baby. :)

Dialysis wise, things are going great.  I am successfully self-canulating my revised fistula.  When my first permacath came out because of infection, they left the infected cuff in, so I was on antibiotics 5 or 6 times between September and January for recurrent Staph infections.  Finally one of my dialysis docs decided the cuff was still in there and was the source of the infection.  SO I had to have it cut out.  It is MUCH better now. :) 
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #61 on: February 07, 2009, 03:06:37 PM »

It is great hearing about our IHD baby, Kaylynn.  She is doing so well!  And happy that the infection thing got sorted out for you.  You are doing amazingly well.  Please continue to keep us updated.  Our caring thoughts and prayers are with you both all the way.  :grouphug;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Brightsky69
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« Reply #62 on: February 10, 2009, 06:02:48 AM »

That is wonderful!!
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
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