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Author Topic: Hello from Deafman in the Top End of Australia  (Read 3754 times)
deafman
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Yes it is that crazy deaf bloke from the Top End!
« on: February 04, 2009, 04:15:49 PM »
Hello everyone.
Was recommend by a work colleague (thank Jessup  :thx;) to have a look at this website.  Love the name of the website as it is the only way you can describe it.

I have suffered kidney problem for most of my life, I was first diagnosis with it when I was 16 year old.  It was caused by blood poisoning and as a result I had a temperature of 41 C for 3 days.  It was soon after that it was discovered that I had kidney problem.  It worked well for over 13 years until I had to start dialysis.  I was on PD for 3 1/2 years until I had a transplant.  It was just wonderful.  Never felt so good in my life.  Unfortunately 18 months after the transplant I had a silent rejection which was only discovered when it was discovered my creatine level was getting higher.  They did a biopsy then and found that there was some severe scarring in the kidney.And they were able to stabilize it at the time and still working.  Just in the last few months the doctors have noticed that the creatine level is increasing  probably because of the scaring, and had a biopsy yesterday.  I am hoping that they will be able to stablise it again.

I am working full time as a special education teacher in Darwin, Northern Territory Australia.

And yes as the name suggest I am deaf.  However it is NOT related to my kidney disease before you ask. :banghead; :banghead;   ( I get sick of doctors and nurses thinking that there are some connection.)

Looking forward to communicating to you all.

Deafman.
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monrein
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Might as well smile
« Reply #1 on: February 04, 2009, 04:20:04 PM »
 :welcomesign; to this community Dm,  that Jessup is a sweetie and I'm glad she told you about us.  I hope you'll post often and I look forward to knowing you here.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #2 on: February 04, 2009, 04:24:18 PM »
:welcomesign; deafman. So glad you joined us. We are a wonderful group with loads of information and support at a moments notice. Great introduction and we are so happy that Jessup told you about us. Please post often, we look forward to hearing more about you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Wenchie58
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Always carrying the big silly grin!
« Reply #3 on: February 04, 2009, 04:28:49 PM »
 :welcomesign;

Glad you joined us!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
paris
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« Reply #4 on: February 04, 2009, 04:36:29 PM »
 :welcomesign;   First, thanks to Jessup for pointing you to the best site on the internet!   Second, we are very glad you joined us.  I am sure Jessup has told you all about us (don't believe everything) .  There is so much information and even more support.    You have experienced all aspects of this disease and I am sure we can learn a lot from you.  Looking forward to reading more of your posts.   You are amoung friends   :grouphug;



paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Razman
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« Reply #5 on: February 04, 2009, 04:51:32 PM »
It's great that you joined the "team".  Let us know the results of the tests and I hope that they can keep the kidney going for a long time.  :welcomesign;
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MandaMe1986
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« Reply #6 on: February 04, 2009, 04:56:38 PM »
Hi Deafman  :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
David13
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A meow massages the heart.
« Reply #7 on: February 04, 2009, 05:01:42 PM »
Welcome, Deafman!  You will find a very supportive community here and a lot of useful information as well!

 :welcomesign;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
pelagia
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« Reply #8 on: February 04, 2009, 05:37:29 PM »
 :welcomesign;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
kellyt
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« Reply #9 on: February 04, 2009, 05:59:01 PM »
 :waving;   You will love it here!  I look forward to hearing more from you.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
boxman55
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« Reply #10 on: February 04, 2009, 07:53:30 PM »
Welcome to IHD we are glad you found us. Look forward to your posts


Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
charee
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« Reply #11 on: February 04, 2009, 09:12:21 PM »
Welcome from another Aussie from country NSW hope to see more of you around here

cheers charee
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
Joe Paul
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« Reply #12 on: February 04, 2009, 10:05:33 PM »
Welcome Deafman, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #13 on: February 04, 2009, 10:12:30 PM »
Welcome to our community, Deafman!!  A special welcome for a fellow member of the Commonwealth (born in Barbados, presently living in the British Virgin Islands) We have a great group from your country.  We also have some special ed teachers here.  (I too belong to the teaching profession) We are really glad that you obeyed Jessuo and decided to join us.  This is a wonderfully caring and sharing group.  Sometimes it is hard to believe that we are all over the world.  We are more than a website - we are a genuine family  :grouphug;  Just look around the site.   Read as much as you can, but also post as much as you can.  We want to know how that kidney is doing (and how you are doing too!)
Looking forward to hearing more from you :flower;





Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
G-Ma
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« Reply #14 on: February 04, 2009, 11:13:35 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Wattle
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« Reply #15 on: February 04, 2009, 11:51:32 PM »
 :ausflag;    :waving;   Glad you found us.

Aussie aussie aussie OI OI OI      :cheer:
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
paul.karen
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« Reply #16 on: February 05, 2009, 05:54:01 AM »
Did you loose your hearing due to Dialysis.  (just kidding, playing doctor) :o  :sarcasm;

Glad Jessup pointed you in our direction.

Just curious if you worked the whole 3-1/2 years while you were on PD.
And did you use a cycler or just do manuels?
Wishing you the best on them keeping that kidney working well.
Hope to see you on many of the threads.
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
drinkboy
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« Reply #17 on: February 05, 2009, 07:32:18 AM »
Welcome aboard.   I wish you luck with the kidney.
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twirl
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« Reply #18 on: February 05, 2009, 07:51:12 AM »
I thought all men were deaf

(just joking)
I was a special education teacher before dialysis ruined my career
I envy you to still be connected with teaching
do you know Ang ?
we seem to have cool members from Australia
we have a thread on what did you eat for supper in the Diets and Recipes section
I wish you would share with us what you eat
it is fun to hear interesting things people eat
like yorkshire pudding and we eat hushpuppies
it does not have to be renal safe
just whatever you ate
nice to know you
Kitkatz is another teacher and so is Mibarra and we have others
I often wonder if teaching causes kidney problems
( just joking)
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Dan.Larrabee
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Dialysis Dan
« Reply #19 on: February 05, 2009, 06:38:05 PM »
Welcome and good luck to ya!
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AKA Dialysis Dan
Feeling the best I can because of Home Hemo
Doing it the best way I can by making it Nocturnal
Sharing it to help everyone feel they best they can
www.youtube.com/dialysisdan
deafman
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Yes it is that crazy deaf bloke from the Top End!
« Reply #20 on: February 06, 2009, 05:07:36 AM »
Quote
Did you loose your hearing due to Dialysis.  (just kidding, playing doctor) :o  :sarcasm;



Just curious if you worked the whole 3-1/2 years while you were on PD.
And did you use a cycler or just do manuels?
Wishing you the best on them keeping that kidney working well.
Hope to see you on many of the threads.
P&K

PK
The answer to the first question is nope, I was born deaf.  There is no connection between the deafness and the kidney condition.

I had just completed teacher training when I had started dialysis.  At the time I was living in Brisbane, Sunny Queensland, Australia, and I was not able to get much work there as there was too many teachers there looking for work.

About a year after I started dialysis I found out that they were short of teaching in Darwin, so I moved there and they were so short of teachers I was able to get plenty of work both relief and contact teaching until the year after I had a transplant.  I then was offered a contract teaching in a remote Aboriginal community about 900 km out of Darwin (In the middle of the Tanami Desert) for a year.  After that I got permanent teaching position with the Department of Education and have been so since then.

I used to do the manual format of dialysis while I was teaching and I really had a good excuse why I couldnt do yard duties during lunch.  I am still looking for an excuse to get out of yard duties at lunchtime since I now have a transplanted kidney.  Any suggestion?




EDITED - Fixed Quote Error - Bajanne, Moderator
« Last Edit: February 06, 2009, 04:48:53 PM by bajanne2000 » Logged
jessup
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Gemma - the tucker monster
« Reply #21 on: February 06, 2009, 01:50:20 PM »
G'day mate and  :welcomesign;
Glad you joined IHD
 :2thumbsup;
You are such a positive and humerous bloke
You and Ivy (your darling woofer) are a great asset to our school footy team - the kids reckon it's great that Ivy is the Aussie rules footy trainer and you are one of our assistant coaches


Catch ya later "chalkie"
 :beer1; :beer1; :beer1;
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Zach
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"Still crazy after all these years."
« Reply #22 on: February 06, 2009, 02:06:24 PM »
Real good to have you with us!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
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