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Author Topic: They say everything is shutting down  (Read 39774 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #225 on: January 17, 2009, 09:33:50 AM »


Come back and post whenever you want, you're part of our family now Roxanne.

The holy card is a beautiful sentiment.

Take care Roxanne. All the best to you and your Mom and brother.  :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile

« Reply #226 on: January 17, 2009, 09:38:07 AM »

Hugs to you and your family Roxanne and as Okarol said already, you're always welcome to come here and post.  Let us know how you're doing because we really do care.  :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
G-Ma
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« Reply #227 on: January 17, 2009, 10:49:56 AM »

 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
kitkatz
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« Reply #228 on: January 17, 2009, 01:20:04 PM »

 :grouphug;  You need them right now.  :grouphug; :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
paris
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« Reply #229 on: January 17, 2009, 02:49:08 PM »

Please come back from time to time and let us know how you are.    The words on the prayer card were beautiful.  Thank you for sharing them with us.  Take care of yourself  :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #230 on: January 17, 2009, 03:27:43 PM »

 :grouphug; :grouphug; :grouphug;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
pelagia
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« Reply #231 on: January 17, 2009, 07:50:28 PM »

I've been thinking of you Roxanne.  Thanks for coming back and sharing the prayer card.  Please do come back anytime.  The IHD family will be here.  :grouphug;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
jessup
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Gemma - the tucker monster

« Reply #232 on: January 17, 2009, 08:45:43 PM »

I have been thinking of you, your bro and Mum
Lots of love and wishes mate
 :grouphug;
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rose1999
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« Reply #233 on: January 17, 2009, 11:45:52 PM »

As I sit beside my own Dad's hospital bed I think of you,  I am so sad that you lost your Dad at such a young age.  My own son's lost their Dad (my husband of 25 years) when he was 52 so we understand how it feels.  Your prayer card was so apt.  Sending love to all of your family. Rose  :grouphug;
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Lucinda
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Life is great!

« Reply #234 on: January 19, 2009, 08:34:51 PM »

Hi Darling.....you come back here anytime you want.  We are all still here for you.  You are part of the family now.  I know from losing my Dad you will have your ups and downs and always know there is someone here if you want to come and talk or rant.  I'd be very sad if you didn't keep in contact and I am sure everyone else would as well.  Take care.  Lots of love xx :grouphug;
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thegrammalady
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« Reply #235 on: January 23, 2009, 09:14:33 AM »

i have been out of town and only popping in and out so i just saw this today. i'm so sorry for your loss. you will be in my prayers. know that you are always welcome here. in fact we'll miss you terribly if you don't pop in every so often.
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s
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
nursewratchet
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"Either do it, or don't do it, don't try"

« Reply #236 on: January 23, 2009, 05:00:08 PM »

Stay in touch Roxanne.  Everyone is thinking about you and your family..
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RN, Facility Administrator 2002 to present
RN, Staff Nurse 1996-2002
Vicki
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« Reply #237 on: January 23, 2009, 09:42:26 PM »

Yes Roxanne your not getting away that easy. Please stick around and let us know you and your family are doing.
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #238 on: January 23, 2009, 11:22:28 PM »

Thanks for sharing with us Roxanne.   :grouphug;  Please listen to what everyone is saying.  You are part of our family now, and want to still see you post here.  Feel free to continue to share with us as you go through the process.  My caring thoughts and prayers are with you and you family. :cuddle;

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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
RichardMEL
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« Reply #239 on: January 24, 2009, 12:52:58 AM »

I just want to post here what I have said to Roxanne privately....

This is such a difficult time specially with dad's recent birthday being such a difficult time without him there. I didn't know him at all but I have a fair idea what he would want now for Roxanne and everyone else in his family is to live the best life that they can. Specially for all the struggles he went through being so sick for a majority of his years he would want his family to live the wonderful lives they can. I am NOT saying forget about him and move on. Of course not. that's impossible to do and nobody would want that.. but at the same time it's important to not let grief bog you down. Dad wouldn't be happy with that.

Hang in there Roxanne you are in our thoughts!!   :grouphug;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Mizar
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« Reply #240 on: January 24, 2009, 04:30:05 PM »

 :grouphug;
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drinkboy
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« Reply #241 on: January 26, 2009, 08:14:31 AM »

Roxanne,

I am so sorry to hear about your father, and all of the circumstances over the last month in the hospital. I haven't been on in a while and just saw this.  Please come back from time to time and visit and post...as you know, it's a big family here and we all pull for each other.

I know exactly what you're going through now, as I lost my mother on September 26th after getting an infection in the hospital and it was three weeks of hell as they couldn't get it under control.  But please keep in touch here, and let us know how you are, and also, you can still offer advice and wisdom to others that may be going through similar situations. It took me a while to want to come back and post and I still get in my funks where I don't visit the site, but it is a win-win to post and respond to people here....it helps them (hopefully) and it is therapeutic, in a way, to offer advice to others or share a story that may comfort them.

So stay in touch and come back.  Every day is difficult and nothing anyone can say will make it better, but knowing she is in a better place and out of pain is the one thing that is comforting. So try and remember that, especially during bad days or moments.  I read your father's obituary, and I think it's wonderful that he and your mom were married that long.  I'm sure you and your family will help your mom and each other get through this...spending as much time with my dad as possible has helped him and myself, so that's one last bit of advice I would share....as hard as it is on us kids, it has to be harder on the person they were married to for so long.

God bless and try to remain as positive as you can
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