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Author Topic: Anyone else have problems with stiff muscles tissue?  (Read 1777 times)
KarenInWA
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« on: January 23, 2009, 10:54:22 PM »

Okay, this might be a weird one, but I just gotta ask.  I just came back from having an hour-long deep tissue massage.  I try and get these on a regular basis.  I went without one for almost 2 months, then had a 2-hour one last week.  I go in today and am told by the massage therapist that I have the muscle strain of someone who does a lot of training or rowing.  Which I don't do at all!!!  My normal life consists of working over 40 hrs a week in a cubicle in front of a computer, attached to my "leash" (call center tech support), then go home and be a couch potatoe (I know, I know, I need to exercise!).  Now, this could all be related to my posture while I'm at work, but a part of me is also wondering if this may be related to my KD.  Back when my creatinine was 1.6, my neph told me that I had the creatinine of Arnold Schwarzenegger (and I am a tall, slender woman who was in her 20's at the time!).  I also have been told to not do weight lifiting because of my KD, in relation to my creatinine levels.  My creatinine right now is 2.0.  I also do have a minor case of scoliosis, so I know that contributes to my issues, as well.  It probably doesn't help that I also have reynaud's syndrome (good lord, I'm a mess!)  I have been getting massages on and off since 2001.  They are not a luxury anymore to me, they are now a neccesity.  If I go too long without one, my muscles get all knotty (lol!) and I feel all stiff and sore.  So, does anyone else have this same problem?  Of all the medical problems I've had, I enjoy the treatment for this one the most (who wouldn't?)!  I probably should look into seeing if I can my insurance to pay for some of these!

Karen
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
G-Ma
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« Reply #1 on: January 24, 2009, 12:11:36 AM »

I'm so sorry.  My sister has muscles like leather...she had nephritis starting at about age 8, and sarcoidosis was diagnosed several years ago...about 20 years and about 5 years ago she had to have some kind of shots in her back and shoulders because her muscles seemed to freeze up.  The Drs did say that was due to the Sarcoidosis which had affected her liver more than anytrhing.  She is doing much better the last couple of years but is a health nut...sometimes I think over the top..but that's a sister thing   :rofl;
I hope they figure out what is wrong.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
kitkatz
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« Reply #2 on: January 24, 2009, 12:03:04 PM »

My back muscles are usually sore. I don't know if it has to do with ESRD. Be an idea to research, though
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