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Dialysis: General Discussion
Some Days All You Can Do Is Shake Your Head
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Topic: Some Days All You Can Do Is Shake Your Head (Read 4520 times)
silverhead
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Some Days All You Can Do Is Shake Your Head
«
on:
February 07, 2009, 07:23:07 AM »
Hi Gang,
Sharon had heard Kidney removal surgery as planned and everything went pretty well, the surgeon used the laprescopic equipment, but had to make a large enough incision to get his hand into the cavity to finally grab” the kidney and remove it (she has a tremendous amount of scar tissue in the abdomon that caused removal problems) That was on a Monday and she was discharged to home on Friday. Things went well until the next Monday during her dialysis treatment she started having a lot of breathing difficulties, I took her off the machine and did my best to assess what was going on, finally had to call 911 and the local firefighters sent 2 ambulances to the house, they did a really professional assessment and it looked to them that she was having heart problems, so off to the ER we went, once we got her in there it was apparent her heart was in rapid, irregular beating, they were able to stabilize it eventually and moved her to the heart floor, I feel she got really top flight attention from a wide variety of specialists in just about every possible testing procedure there is, the latest diagnosis is she has Congestive heart failure caused by a heavy fluid overload in her system (Wednesday afternoon they removed almost 2 quarts of liquid from her lungs, her heavy breathing returned to normal and she was finally able to rest much more comfortably) this morning they did a heart catheterization, where they thread a wire from the leg femoral artery up to the heart and inject a dye and check all the arteries feeding it and the good news was that she looked excellent in that regard, so her prognosis is pretty good if we can do a better job of fluid removal during dialysis in the future. We both feel bad that this has happened because we missed the fact she was overloading, but all the points we watch for fluid retention were actually looking like she had to much removed (swollen ankle and dry wrinkled skin is what we had been watching). Hard lesson learned, but a good education I guess.
I have to start making room in the living room for a hospital bed for her to use and to be next to the dialysis machine, but am taking just a little time to catch my breath, have been averaging maybe 2 hours sleep per day for 2 weeks and am wiped out right now. She may be able to come home Saturday.
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2_DallasCowboys
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Re: Some Days All You Can Do Is Shake Your Head
«
Reply #1 on:
February 07, 2009, 07:40:38 AM »
I can't imagine how terrifying this had to
be for you, and of course for her! Thank God
the medics acted quickly, I do hope that everything
is up and up for you both from here on in.
Sending prayers your way,
Anne
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willieandwinnie
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Re: Some Days All You Can Do Is Shake Your Head
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Reply #2 on:
February 07, 2009, 08:09:53 AM »
Oh Lord silverhead. Tell her that our thoughts and prayers are with her. I have been through the same exact thing with my hubby and I know how terrified you must of been. Bless your heart. Please keep us updated and take a break for yourself.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
okarol
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Re: Some Days All You Can Do Is Shake Your Head
«
Reply #3 on:
February 07, 2009, 08:12:02 AM »
When fluid collects in the chest it's really hard to recognize, especially after she'd just been through major surgery. Don't blame yourselves, thankfully she was treated quickly!
Sending good wishes - hoping things improve now!
«
Last Edit: February 07, 2009, 09:52:18 AM by okarol
»
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
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Living Donors Rock!
http://www.livingdonorsonline.org
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breezysummerday
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Re: Some Days All You Can Do Is Shake Your Head
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Reply #4 on:
February 07, 2009, 09:35:30 AM »
Chief cook and bottle washer, indeed!
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
paris
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Re: Some Days All You Can Do Is Shake Your Head
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Reply #5 on:
February 07, 2009, 10:26:09 AM »
It sounds like you did everything right for her. Thank goodness you called 911 and didn't wait for things to get better. It is good the hospital did so much for Sharon. Hope she comes home soon and you can get back into a routine. Give her our good thoughts
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kitkatz
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Re: Some Days All You Can Do Is Shake Your Head
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Reply #6 on:
February 07, 2009, 10:27:57 AM »
I hope everything is going to go smoothly from now on.
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lifenotonthelist.com
Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Tinah1968
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Re: Some Days All You Can Do Is Shake Your Head
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Reply #7 on:
February 07, 2009, 01:27:20 PM »
Praying for you and hoping she gets well soon
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
jessup
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Re: Some Days All You Can Do Is Shake Your Head
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Reply #8 on:
February 07, 2009, 02:28:54 PM »
Sending my love and wishes to you both
It is great to hear that the firies, ambos and hospital were so helpful
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: Some Days All You Can Do Is Shake Your Head
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Reply #9 on:
February 07, 2009, 03:03:58 PM »
Wow! what an experience! I am glad that you are now through it. Our caring thoughts and prayers are with you and Sharon all the way. Please give her our love and a big IHD hug (when you can)!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
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pelagia
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Re: Some Days All You Can Do Is Shake Your Head
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Reply #10 on:
February 07, 2009, 04:30:19 PM »
Sounds very scary. Thank goodness for the EMTs. I hope Sharon feels better soon and that you get some sleep.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
paddbear0000
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Dogs & IHDer's are always glad to see you!
Re: Some Days All You Can Do Is Shake Your Head
«
Reply #11 on:
February 07, 2009, 08:39:03 PM »
Please let her know she is in my thoughts and prayers!!
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @
www.cafepress.com/RetroDogDesigns
!!
...or sponsor me at
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
G-Ma
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Re: Some Days All You Can Do Is Shake Your Head
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Reply #12 on:
February 07, 2009, 11:26:39 PM »
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Joe Paul
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Re: Some Days All You Can Do Is Shake Your Head
«
Reply #13 on:
February 08, 2009, 05:24:25 AM »
Hope she is doing better, and you are getting some rest...Take care
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Loretta
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Re: Some Days All You Can Do Is Shake Your Head
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Reply #14 on:
February 08, 2009, 08:49:10 PM »
I hope you can get some rest. Remember that you need to take care of you.
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silverhead
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Re: Some Days All You Can Do Is Shake Your Head
«
Reply #15 on:
February 08, 2009, 09:44:40 PM »
Thanks everyone for your replies, it means a lot, Sharon was brought home yesterday (Sat) and has been pretty much sleeping the whole time, they said this would happen so not too concerned, the combination of what she has been through and the meds she is on will do this, she will have to go in in 2-3 weeks and have a defibrillator installed and they feel she can back off of the meds and hopefully regain some needed function-ability and wakefulness. I have been getting a little more rest, but one son from Oregon and the other from Alaska came home yesterday and with our Daughter being nearby, we have all been spending time together, Good to see them, but had to call it quits early tonight to get some more rest. Still wake up every 2 hours to check on her, old habits are impossible to break don't you know.........
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Do not argue with an idiot. He will drag you down to his level and beat you with experience.
paddbear0000
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Dogs & IHDer's are always glad to see you!
Re: Some Days All You Can Do Is Shake Your Head
«
Reply #16 on:
February 09, 2009, 02:11:04 AM »
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @
www.cafepress.com/RetroDogDesigns
!!
...or sponsor me at
http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf
www.caringbridge.org/visit/janetschnittger
Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
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