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Author Topic: Should Dialysis Centers Allow Food and/or drink?  (Read 27245 times)
mikey07840
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Her royal highness Queen Ruth on her throne, RIP

« Reply #75 on: January 16, 2009, 07:51:54 PM »

My Home PD clinic has very similar rules:

1. Patient may eat or drink at any time.
2. Patient may dress as comfort requires.
3. Patient is required to tell nearby feline how handsome or pretty he/she is. (As needed and apples.) Kitty massages must be provided by patient.
4. Patient is required to work with tech (self) by resolving all machine alarms.

I cannot express how happy I am with my ability to do home PD. I don't miss going to the outpatient center 30 minutes from my home 3x a week.
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
twirl
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« Reply #76 on: January 18, 2009, 01:00:02 AM »

I WANT TO GO TO DIALYSIS AT THE MIKEY CLINIC
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pdpatty
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« Reply #77 on: January 18, 2009, 05:41:58 AM »

If the clinic I use would say no to bottled water,i would comply. The man who sits acroos the pod from me has a porblem with high patassium so while on the machine ,his girlfriend will bring him a diet Mt Dew(also a diabetic).Diet Mt Dew has 2 types potassium as sweeteners.He will also eat porkrinds.
I use a very good clinic because the Doctors care.
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thegrammalady
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« Reply #78 on: January 18, 2009, 12:44:46 PM »

If the clinic I use would say no to bottled water,i would comply. The man who sits acroos the pod from me has a porblem with high patassium so while on the machine ,his girlfriend will bring him a diet Mt Dew(also a diabetic).Diet Mt Dew has 2 types potassium as sweeteners.He will also eat porkrinds.
I use a very good clinic because the Doctors care.

it's not the clinics responsibility to make sure people follow the necessary dietrestrictions. "you can lead a horse to water but can't make him drink" and unfortunately while the staff can't really force a patient to be compliant they have to deal with the fall out from those who aren't compliant.
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RichardMEL
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« Reply #79 on: January 18, 2009, 03:35:01 PM »

The thing that you gotta wonder about if a patient has problems with high K and they're in center and the staff see this guy drinking a K laiden drink wouldn't you think someone would say something to him?? Now OK if he and his gf don't want to follow that fine but sheesh. It's amazing what some people will do to themselves...

The worst part is in this day and age say something bad happens to this guy as a result of high K what bet they sue the clinic or doctors despite their obvious irrepsonsibility in the area..... That's the sort of thing that really annoys me. People who take no responsibility for their own actions but then blame others for it. Somehow it must be the clinc's fault or the doctors fault that they didn't follow their diet or had too much fluid or whatever....

*sigh*

Oh and by the way I want to make it clear I am hardly the poster child for great diet habits, but if someone said to me "your X level is high you should really avoid A B & C" I sure as hell would. I'm doing my best (within some limits) to take care of what's left of my body. Some people just don't.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
wrandym
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Whatever, dude!

« Reply #80 on: January 18, 2009, 03:54:40 PM »

At my center there are plenty of people who sit there with a bag of chips and a large fountain soda.  I talked to one gentleman about his diet and he said that he has been on dialysis for years and is not pursuing a transplant-he is going to live his life as he pleases.  I guess that is his prerogative, but I am new to all of this and want to stick around a while  :P  I do have issues staying under my fluid intake level.  I am used to having a large mug of iced tea full and at my side all of the time...gosh I am thirsty.
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Abyssus abyssum invocat

1982 Diagnosed with Type 1 Diabetes-started on pork insulin
1999 Started showing protein in urine
2000 Retinal issues began-ended with losing sight in both eyes due to retinal detachment-sight returned by surgery
2003 Started on Insulin Pump
2008 November started hemodialysis
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