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Author Topic: I should find out tomorrow if my ESRD is getting worse  (Read 6211 times)
Chris
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« Reply #25 on: December 19, 2008, 04:41:33 PM »

That's a way better doc there paddbear.

Monrein, kidney and pancreas transplants use cadaver donors. Partial live pancreas transplants have not proven feasable and a high risk for the donor so far.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
monrein
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Might as well smile

« Reply #26 on: December 19, 2008, 07:40:08 PM »

Sorry, I missed the double organ part of it.  I always wished that I'd had my fistula earlier so I could have avoided the permacath situation but as you all know by now, those catheters are (one of) my worst fears.

This neph sounds so much better, Paddbear.  Especially about the bloodwork.  The other one sounded strange with the once a year idea.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #27 on: December 20, 2008, 05:05:51 AM »

Tell me about it! The last one was supposed to be the best nephro at Ohio State University Medical Center. Plus he specialized in diabetic nephrology! An even bigger bonus now, the drive time has gone from being 2 hours to slightly less than one!!   :bandance;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
kellyt
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« Reply #28 on: December 20, 2008, 06:49:40 AM »

When I thought that I was going to have to do dialysis in the hospital the night before my transplant I asked my neph if it would be better for them to do a neck catheter and not use my fistula.  He freaked out!   "YOU DO NOT WANT A CATHETER!  They can use the fisutla!"   I was just so scared of using the fistual do to the large needles and such.  So stupid!  I'm very glad I didn't have to use the fistula OR get a catheter!  Whew!      My neph was on top of things from the get go.  I feel so fortunate all the way around!

Good Luck Padd.  I think getting a fistula sooner than later would be best if your function does start to drop.  Sounds like you're on the right track with this neph!    :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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