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Author Topic: 2nd try at a fistuala  (Read 2821 times)
TwistedKitten
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I refuse to let the kidney disease define who I am
« on: November 28, 2008, 07:02:29 PM »
So yesterday morning (Nov. 27) I had surgery to create a fistula. This time in my right arm. So because of my clotting issues I've been put on blood thinners. 3 for now. Dalteparin, Warafrin and well Aspirin as well to help, but I should be coming off the Dalteparin soon. 
So I went into this hopeful but cautious because the first fistula created clotted off  by the time I got up to recovery :'. But I am happy to say that it worked this time.  :cheer:  :bandance; I got a nice bruit. So now I'm hoping my line will work until the fistula is mature enough to use, and when it is to get the button holes established. I can't stand being poked with needles going into my veins, so the button hole technique is perfect for me. Providing they can use it on my fistula *crosses fingers*. So I guess I'll have to wait for the new year to find out.

A quick question before I go, Is it normal to be able to hear my fistula at times without the use of a stethescope?

 :yahoo;
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~I'm staring out into the night Trying to hide the pain~ Home by Chris Daughtry

~Life has it's ups and downs, its twists and turns. It's how we look at it and turn those things around, now that's the key thing~ Kevin Sharp

~Life isn't about the amount of breaths you take, but the moments that take your breath away~

~Think of each day as a special gift, and unwrap it gratefully~

~My meow is just too unorthodox for these kittens~
Rerun
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Going through life tied to a chair!
« Reply #1 on: November 28, 2008, 07:13:05 PM »
Let's hope this one lasts for a long long time.  I think you could probably hear a really good fistula.  I can hear mine when I put my head on my shoulder.  You have been through a lot so I hope things go great for you from now on.

                                                             :waving;
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Jess21
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« Reply #2 on: November 28, 2008, 07:14:54 PM »
Quote from: TwistedKitten on November 28, 2008, 07:02:29 PM

A quick question before I go, Is it normal to be able to hear my fistula at times without the use of a stethescope?



Yes!  When mine is going full blast (sadly, it hasn't been @ all times since wednesday  :'( ), I can hear it thru pillows!  Mine is very superficial though. Crazy feeling I know, but weird when it's not there (which I also know...  :'( )
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
G-Ma
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« Reply #3 on: November 28, 2008, 07:19:33 PM »
Yes, I can hear mine but the weird thing is I can feel it without touching my skin   ???
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Jess21
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« Reply #4 on: November 28, 2008, 07:30:28 PM »
yea g-ma you mean the vibrations?  i feel it in hand.  and see it.  and also calm dogs/cats with it. hehe. I'm just that good.
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
G-Ma
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« Reply #5 on: November 28, 2008, 07:32:35 PM »
wow Jess...I AM impressed.   :bow;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
monrein
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Might as well smile
« Reply #6 on: November 30, 2008, 02:38:03 PM »
All I need to hear mine is an ear.  No steth required at all. 

Hope yours matures well and lasts as long as you need it.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Ang
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« Reply #7 on: November 30, 2008, 02:43:39 PM »
when  mine  was  working  properly,


the  thrill  used  to  put  me  asleep
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live  life  to  the  full  and you won't  die  wondering
TwistedKitten
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I refuse to let the kidney disease define who I am
« Reply #8 on: December 08, 2008, 06:13:50 PM »
i can understand about the thrill putting you to sleep. i heard mine last night (through my pillow) and it's oddly a very calming kinda tranquil sound. helped put me to sleep to. which is a little weird.  :rofl;
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~I'm staring out into the night Trying to hide the pain~ Home by Chris Daughtry

~Life has it's ups and downs, its twists and turns. It's how we look at it and turn those things around, now that's the key thing~ Kevin Sharp

~Life isn't about the amount of breaths you take, but the moments that take your breath away~

~Think of each day as a special gift, and unwrap it gratefully~

~My meow is just too unorthodox for these kittens~
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