Back from our cruise

[monrein]

Joanie, I'm so sorry to hear that Chuck is in the hospital again and that things are so difficult.  Please know that all my best thoughts are with you both and as extrememoosetrax said, take care of yourself also.

Big Hugs
Gail

[rookiegirl]

Joanniebop,

Thank you for taking the time to answer my cruise questions.  It really help me feel more at ease.

On another note, I'm sorry to hear that your hubby is not feeling well.  I pray he will get better and come home.  Please let him know that we are all thinking and praying for the both of you.

RG

[Joanniebop]

Thanks everyone for your care, concern and prayers for us and you must know that this is the place that I feel at home. Here on IHD, because you all know what we are going through.
I was finally able to get him home today by stretcher and he is sleeping comfortably in his own bed.
Having him home will be a challenge, but I am definitely up for it mentally although physically I am afraid that I have not been taking care of myself and am not feeling too well. I am finding it very difficult to eat and have lost a great deal of weight. Everyone keeps telling me to eat , but I just can't.
Any suggestions?
I don't want to feel this way and I know that I've got to be at my best to take care of Chuck.
I don't know, maybe that now he is home things will get back to normal and I'll start eating again.
What I've just written I can't even say to my own family because I don't let on that there is anything wrong with me, I LIE TO MY FAMILY ABOUT WHAT I have eaten for the day, so that they won't worry. I have to put on the strong front.
Sorry to talk about myself but just had to let it out.
Thank for listening and if anyone has any suggestions I'd appreciate hearing from you.
Joannie

[monrein]

Please don't ever be sorry to talk about yourself.  YOU are important, to Chuck and to us and caregivers need care given too.  If you're having trouble eating, can you try some of the meal replacement drink thingies, not the renal ones but others that will give you some nutrition to get by on?  I think that caregivers are quite often overlooked as the bulk of concern goes to the patient but you're in this together and the stress is tremendous.
Biggest hugs to you Joanie, and talk about yourself as much as you need to,  OK, we listen well.

[Joanniebop]

Monrein, thanks so much for your kind words and I do remember now that  my Mother tried to tell me the same thing to drink the supplements that I have for Chuck ( always thought I was too young for those things).
I will try to drink them as often as possible.

Now, about Chuck.
Hospitals are so insulin happy that twice now they almost killed him. 
( By the way, it seems like this thread should be moved but I wouldn't know how to do it )
In the hospital his count was down to 20. He was non responsive and had to be moved to ICU. I won't go into the details of his entire stay and all his problems but yesterday the nurse gave him a shot and sure enough this morning he was non responsive with a reading of 26. He started to throw up and I thought that was it. I couldn't get him to drink anything so I put dialyste solution in  him and slowly but surely he is gradually coming back to us. I wouldn't dare call 911 and send him back to the hospital.
Thanks everyone for listening. I don't know what I'd do without you and IHD.

Joannie

[rose1999]

Joannie I'm so sorry to hear about Chuck and I do hope things will improve.  Please look after yourself, I know how hard it is to eat when you feel so bad and have no appetite but tell yourself you have to stay strong to look after Chuck.  Eat whatever you fancy, chips, chocolate, whatever - it doesn't matter what it is at the moment but you need the calories to give you energy.  Try the drinks Monrein suggested or a smoothie if you really can't face food.  I'm sending love and prayers for you and Chuck 

[Sluff]

This Topic has been split. The balance of this thread has been moved here: http://ihatedialysis.com/forum/index.php?board=70.0



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