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Author Topic: A Little Bummed...  (Read 2649 times)
kellyt
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« on: August 01, 2008, 01:52:42 PM »
The dialysis clinic that is close to my home that I THOUGHT my doctor said did nocturnal doesn't.  I guess he was just telling me that there is a clinic near my home.  My closest centers would be downtown (maybe 20-30 minute drive if there is no problems with traffic) and New Braunfels, TX (a large "town" about the same drive time, but probably further distance.

<sign>   I go downtown to see my Neph, but now three times a week on a fixed schedule!  Bummer!    But I still think nocturnal would work best for me.  I guess I'll drive them both and see how they go.  I may go to the downtown clinic tonight for a visit.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Rerun
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« Reply #1 on: August 01, 2008, 02:37:42 PM »
Remember you will be going at about 8PM and leaving about 4AM.  Usually no traffic at 4 in the morning??

              :thumbup;
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kellyt
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« Reply #2 on: August 01, 2008, 02:57:42 PM »
I've been wanting to talk to you about nocturnal, Rerun.  I've read that you "hate it less".  Fortunately and unfortunatley, I don't have anything to compare it to.  I think it would work well for me, though.  It is true that your diet is more "normal" than if you do the 3-4 hr runs?
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
kitkatz
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« Reply #3 on: August 01, 2008, 09:32:11 PM »
Yes, Rerun you are our expert. Do tell. I start next Wednesday.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Rerun
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Going through life tied to a chair!
« Reply #4 on: August 01, 2008, 10:11:24 PM »
Do the math.  9-12 hours a week versus 24 hours a week.  It is going to filter more toxins and be more gentle sucking off the extra fluid.  I'm OFF blood pressure meds.  I don't take binders unless I am having a glass of milk.  YES... MILK!   ;D  I have played around with the Phos foods and I con only have 1 8oz carten of milk a week.  But that beats the hell out of none.  I still watch what I eat, but my numbers seem to be good.  It would be awesome if they would put me on 1k but they insist on 2k.  If I were on 1k I'd go eat a watermelon.

I don't crash anymore.  The thing is I don't know exactly where my dry weight is because I "don't" crash anymore.  I just keep it where it's at and I seem to be good. 

I had problems because I took Labatol which is a beta-blocker for my premature heart beat.  Well that was knocking my blood pressure through the floor.  65/40.......  So now I only take a quarater of that pill morning and night and I'm fine.  I had to figure that one out myself as usual!!

Any other questions?  I feel so popular!!!    :clap;
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lola
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« Reply #5 on: August 01, 2008, 10:14:44 PM »
You are popular Rerun :flower;
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kitkatz
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« Reply #6 on: August 02, 2008, 08:44:22 AM »
Thanks for the information Rerun. I am looking forward to something new on Wednesday.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kellyt
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« Reply #7 on: August 02, 2008, 02:08:21 PM »
Yes, Thank You!   I'm so happy for you, Kitkatz.  I hope you do well and enjoy the change.  I should get my answer sometime this week if he wants me to start or wait.

Rerun, are visitors allowed at nocturnal?  If so, until what time?    What kind of dinner/snack do you take for yourself?     Sorry for all the questions.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Bajanne
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« Reply #8 on: August 02, 2008, 05:12:06 PM »
Quote from: kellyt on August 02, 2008, 02:08:21 PM
Rerun, are visitors allowed at nocturnal?  If so, until what time?    What kind of dinner/snack do you take for yourself?     Sorry for all the questions.
Never apologize for asking questions. This is what IHD is all about.  The questions you ask will not help you alone.  All of us need to learn about this.  Remember the buzzword at IHD - "Knowledge is POWER!"  So ask away.

And, Rerun, please answer ASAP!
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I LOVE  my IHD family! :grouphug;
Rerun
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Going through life tied to a chair!
« Reply #9 on: August 02, 2008, 07:49:21 PM »
I take a Nepro protine drink and one pop-tart.  This is my comfort food.  As far as visitors go it will depend on your clinic's policy.  The girl next to me (who has been transplanted) had her boyfriend come stay.  He was so cute he would sit in a chair at the end of her chair and put his head at her feet.  They had to drive 2.5 hours to get to the clinic.  Her Mom usually brought her and then she went to her aunts house to sleep until time to pick up her daughter.  But, when the boyfriend came he stayed all night.  They never messed around (darn)   :rofl;

My family and some friends have come with me just to help me get set up and then they left.
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