devlinswife
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« on: March 07, 2008, 08:32:49 PM » |
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Ok so I have a ton of questions, I just found out today that I have Hepatitis C, my Dr didn't talk to me all that much about it. I am not sure if it was because we were in the dialysis unit when he told me I have it, or what. I would really like to talk to someone that is on dialysis and has Hepatitis C. I want to know how it has affected your life and are there any good websites that will explain what I have? Thanks.
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Live each day as if it will be your last!
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jbeany
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« Reply #1 on: March 07, 2008, 08:44:21 PM » |
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Can't help - I don't know much about Hep C. Just wanted to do this . . . .  . |
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.  |
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devlinswife
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« Reply #2 on: March 07, 2008, 08:59:23 PM » |
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Thank you I needed that so much, I am so afraid that I have already or will pass it on to my husband.
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Live each day as if it will be your last!
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oleboy
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« Reply #4 on: March 08, 2008, 12:31:59 PM » |
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I have sent you and e-mail about Naomi Judd, a country music star that had Hep-c and was cured it tells her story I hope it helps. Best of luck
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'hold fast your dreams for if dreams die life is a broken winged bird that connot fly.'
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willieandwinnie
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« Reply #5 on: March 08, 2008, 12:41:14 PM » |
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devlinswife. I'm sorry to hear about the Hep C. I can't help with your questions but wanted you to know you'll be in my thoughts and prayers. Best of luck to you. |
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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The Wife
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« Reply #6 on: March 09, 2008, 07:38:51 PM » |
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Sorry to hear about your Hep C diagnosis. My partner was diagnosed with Hep C before his kidneys failed. The doctors figured he contracted it when he needed a blood transfusion over fifty years ago. All of his kids, ex-wife, and myself have been tested and we're all okay. So you can breathe about that part. Since Hep C is passed on from blood to blood make sure you use your own nail clippers in case you knick yourself. If you use a razor to shave your legs, be sure to put it away so that no one else can use it. Do not share a toothbrush (not that you do) and make sure if you get blood on a towel, to take it off the towel rack immediately. Just be aware if you're bleeding anywhere.
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annabanana
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« Reply #7 on: March 09, 2008, 08:27:06 PM » |
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My husband was diagnosed with HepC last Aug. The best site I've found so far is "hepcnet.net".
He has not yet started dialysis but the drs. don't seem to think it's an issue.
re: passing it on...I've been with my husband for almost 9 years, changed many a bandage,
and had unprotected sex all this time (until we found out)
and I do not have HepC.
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
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The Wife
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« Reply #8 on: March 09, 2008, 08:34:23 PM » |
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Same here Annabannana. Some people get real freaked out about Hep C but it's not passed on as easily as some think. Just take precautions.
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The Wife
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« Reply #9 on: March 10, 2008, 07:53:54 AM » |
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I have sent you and e-mail about Naomi Judd, a country music star that had Hep-c and was cured it tells her story I hope it helps. Best of luck
I needed to come back to this post in regards to being 'cured.' There is no cure for Hep C but treatment can put it in remission. (I think remission is the word used. If not, dormant.) |
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paddbear0000
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« Reply #10 on: March 10, 2008, 10:54:52 AM » |
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I don't have any information for you either, except a  . |
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kidney4traci
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« Reply #11 on: March 10, 2008, 10:59:14 AM » |
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I found out I had hep C while they were doing screening for transplant evaluation. I propbably had it for over 20 years without realizing it. It wasn't so bad, but they said they wanted to treat for it before I got a new kidney because they do not do interferon post tx due to medication and decrease immune system. Anyway, I went on the drug for the 6 month does and my numbers dropped enough to stop the therapy and get on the transplant list. As far as side effects, I was worried, but never got sick. I did loose hair, like alot would come out in the shower and when you combed it. But that stopped before it was too terribly bad and has grown back in now. Just pray your stage is not too advanced and you don't have too bad a reaction to the interferon. Hope that helps a bit. I never did find a good web site for it, ones i did find were never as active as this one. Here when you need it... |
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04 Hemo in clinic
6/07 hemo at HOME!
2/3/09 - Transplant from an angel of a friend!!!
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devlinswife
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« Reply #12 on: March 11, 2008, 07:18:46 PM » |
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hepcnet.cet has helped A LOT . SO thanks for sending me there, and thanks for all of the support. Devlin (my hubby) just got tested today so we should know in about a week. I seriously think he has it, if not he is having a ton of sympathy symptoms. I pray I am wrong but I don't think I am. Well thanks again to everyone that has commented, I go to the Dr on the 18th so I will let you all know when I hear something new.
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Live each day as if it will be your last!
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Amanda From OZ
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« Reply #13 on: March 11, 2008, 07:35:26 PM » |
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Im sorry to hear that. I have pm'ed you. |
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annabanana
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« Reply #14 on: March 12, 2008, 06:16:37 AM » |
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devlinswife--- glad hepcnet works for you. I get a lot of info there.
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
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st789
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« Reply #15 on: March 12, 2008, 10:42:23 AM » |
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Have Hep. B since 17 and under remission after a flare 8 years ago. Get enough rest and reduce stress as much as possible.
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devlinswife
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« Reply #16 on: March 12, 2008, 07:07:41 PM » |
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Amanda from OZ, I didn't get the PM
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Live each day as if it will be your last!
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annabanana
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« Reply #17 on: March 18, 2008, 06:32:42 PM » |
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devlinswife,
I just wanted to see how Devlin is.....have his test results come back yet?
Have you had good luck researching HepC?
A.
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
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devlinswife
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« Reply #18 on: March 22, 2008, 08:20:15 PM » |
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Would have been on here sooner, but my minivan broke down and we had to go buy a new one,  !! I got a mercury mountioneer I LOVE IT! YES we got Devlins results yesterday--HE"S NEGATIVE  He still has to get tested in 6 months and a year, just because it can be dormant for a while, but I'll take negative. It does kinda put a crimp in our sex life as I have NEVER liked raincoats (and I happen to be quite the horny little devil  ), but I am so glad he doesn't have it. Thank you everyone for your support.
EDITED: fixed smiley tag error-kitkatz,moderator |
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« Last Edit: March 22, 2008, 10:37:25 PM by kitkatz »
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Live each day as if it will be your last!
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charee
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« Reply #19 on: March 22, 2008, 08:22:22 PM » |
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great news
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Home Hemo 18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia
Live donors rock
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Psim
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« Reply #20 on: March 22, 2008, 08:26:07 PM » |
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Whew, this is one time when negative is good.
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paddbear0000
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« Reply #21 on: March 23, 2008, 06:47:18 AM » |
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It's great to hear good news! |
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willieandwinnie
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« Reply #22 on: March 23, 2008, 06:55:58 AM » |
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devlinswife that is wonderful news. |
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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annabanana
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« Reply #24 on: March 25, 2008, 05:37:40 AM » |
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So glad about Devlin!!! I remember getting my results back and feeling so relieved!  |
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
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