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Author Topic: Been in and out of the hospital  (Read 4101 times)
donnia
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me and my donor Joyce

« on: November 15, 2007, 02:14:24 PM »

Remember the "I feel weird" thread..... weeeelllllll..... I am glad I kept pushing it.  The REAL reason why I was swelling so bad is because I had a large blood clot at the end of my catheter!!!!  I kept pushing the issue and they did a second cat scan but went further down on my chest....that is where they found it... they put me in ICU and started immediately pushing blood thinners.  I finally got out last week but I have felt horrible so I have not been on line much.  For 6 days I had to inject myself in the stomach with blood thinners twice a day.  I am also on coumadin (more thinners) until further notice.  I also found out last week that my vein is too deep in my arm, so my fistula will not be useable until I have surgery to bring the vein up closer to the surface..... and I cant have surgery right now cause of the thinners.  AAAGGGHHH!!!! 

Sooooo... just wanted to let yall know why I have not been on line much... just haven't felt very good lately... been lazy.
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
charee
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« Reply #1 on: November 15, 2007, 02:21:50 PM »

good on you for persisting , and they finally found out the problem, hope you begin to feel better soon donina :grouphug;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
paris
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« Reply #2 on: November 15, 2007, 02:28:22 PM »

I am so glad you kept telling them something was wrong.  Another reason why it is so important to know your body and insist that someone listens to you.  You have been through a lot. I hope you can get some rest; I am sure it felt good to be home.   Sending lots of good energy and good thoughts your way :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
angela515
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i am awesome.

« Reply #3 on: November 15, 2007, 02:28:49 PM »

welcome back  :grouphug;

Glas you found out the problem!
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Joe Paul
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« Reply #4 on: November 15, 2007, 02:43:47 PM »

Man, so glad you were persistant. Seems to me our doctor's do not take the time to listen, or maybe they think we are paranoid. Really glad you are OK  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
kellyt
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« Reply #5 on: November 15, 2007, 02:48:26 PM »

wow!  Glad you're back and feeling better.   :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
goofynina
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He is the love of my life......

« Reply #6 on: November 15, 2007, 03:41:37 PM »

What a scary ordeal for you Donnia, but i am glad they found the problem (thanks to your persistance) ;)  Hope your feeling better soon  :cuddle;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #7 on: November 15, 2007, 06:10:11 PM »

I am glad to hear they investigated further. The "just sleep in a recliner" answer didn't seem sensible to me. I hope you feel better and better every day!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #8 on: November 15, 2007, 06:51:31 PM »

I'm glad to hear you're back and things have been straightened out a little more!   :2thumbsup;
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
karen547
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« Reply #9 on: November 15, 2007, 08:31:32 PM »

Glad you stood your ground and found out what was wrong!  :2thumbsup;
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #10 on: November 15, 2007, 08:59:30 PM »

Wow!  Good going!  Hope everything works out well for you from now on.  Caring thoughts and prayers come your way.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
2_DallasCowboys
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« Reply #11 on: November 16, 2007, 05:44:27 AM »

Donnia,

Thank God you were persistant about not finding out
what was "not right" with the way you were feeling.
The Drs. sometimes do not like to be challanged in this
manner, but let's fac e it, it is not their body, it is
yours, and you above all know when there is something
out of wack.
Glad to see you feel better, will pray that all will go OK
for you from here on in

Anne
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Sluff
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« Reply #12 on: November 16, 2007, 05:55:18 AM »

Hope you feel better soon.  :grouphug;
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KR Cincy
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Home hemodialysis since May 07

« Reply #13 on: November 16, 2007, 06:30:58 AM »

Glad you figured out this mystery...now get some rest and get your strength back. We'll be here when you feel better!
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Not giving up...thanks to Susan.
boxman55
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« Reply #14 on: November 16, 2007, 06:48:51 AM »

Glad to hear things are improving. Being on all those blood thinners be careful chopping onions...I'm on blood thinners also and they only let me use rubber knifes  ;D Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
willieandwinnie
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« Reply #15 on: November 16, 2007, 06:52:36 AM »

Glad to see you back. May you continue to improve.

willieandwinnie
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"I know there's nothing to it, but I want to know what it is there's nothing to"
skyedogrocks
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Rob showing off his pot of gold!

« Reply #16 on: November 16, 2007, 07:20:07 AM »

SO glad you pushed it and found the issue.  I'm so happy you are doing better. 
 
A co-worker of mine had a stroke yesterday morning, she's only 40, so young!  She has a clot in her brain that they are working to find and fix.  If you didn't push the matter, you could have ended up the same way!  Dr.'s need to listen to patients, they know their body the best! 

Rest and get better!!!!!  :cuddle;
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.

11/17/09 After 4 years on dialysis, Rob received a kidney from our George.  Kidney is working great!  YEAH!!!!
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