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Author Topic: Hi, I'm Dave  (Read 3830 times)
sueq123
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« on: August 17, 2007, 10:21:49 AM »
My name is Dave and I have been on Dialysis for about a year.  We were lucky to be able to do Home hemo with a Nexstage unit only 4 months into dialysis.  It's going good, although I think it is hard on my wife to do this every day after working and taking care of our daughter, but she
loves me. We've been married 37years, and are raising our 8 year old grand-daughter.  We have had her since she was 8 months old,and brings
such joy to our lives.  We have 10 other grandchildren, ranging in ages 18 months to 15years old.  Those grandbabies are the Best thing our kids ever did.

We started Nexstage so we could have some control--typical type A personalities I guess.   We're hoping to be able to do some traveling again.
Anyone take their unit on a cruise?
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MyssAnne
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« Reply #1 on: August 17, 2007, 10:24:40 AM »
Wow!!! You've had to become very resilient, and I am impressed that you started nxstage so quickly!  There are posts out there about going on a cruise with the machine, perhaps someone can point you to them. If not, try the search option! Oh, and WELCOME!!!! :welcomesign;
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Romona
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« Reply #2 on: August 17, 2007, 01:16:40 PM »
Hi! I'm a newbie too. Love this site. There are some cruises at there that accomadate dialysis patients.
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Razman
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« Reply #3 on: August 17, 2007, 01:36:41 PM »
Its great that you joined and  type A  is   OK  with me.  Someone has to take control and if you leave it up to the nurses and doctors you will never get anything done !   Stay in touch and &   :welcomesign;  aboard.
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donnia
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me and my donor Joyce
« Reply #4 on: August 17, 2007, 03:06:24 PM »
 :welcomesign;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Ohio Buckeye
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« Reply #5 on: August 17, 2007, 03:14:52 PM »
Hi Dave
Welcome to the IHD Family!
Hope you get to do some traveling.
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If I must do this to live, I must strive to live
while I am doing this.
Laurie
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May 13, 2008
« Reply #6 on: August 17, 2007, 08:28:59 PM »
 :welcomesign;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
angela515
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i am awesome.
« Reply #7 on: August 17, 2007, 08:44:03 PM »
 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
kitkatz
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« Reply #8 on: August 17, 2007, 08:52:28 PM »
Welcome aboard!  Have some fun and read the boards! There is a lot of information around here.
There is an entire section devoted to NXStage.



kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Adam_W
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Me with Baron von Fresenius
« Reply #9 on: August 17, 2007, 09:13:14 PM »
 :welcomesign; I've been on dialysis almost seven months, and I also started NxStage about four months into dialysis. I wanted sooooooo bad to be able to do some kind of self-care in the centre I was in, but I was unable to. So, I just said goodby to that centre and hello to NxStage (when it finally became available). I hope you enjoy IHD.
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Joe Paul
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« Reply #10 on: August 17, 2007, 10:58:21 PM »
Welcome Dave, good to hqave you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #11 on: August 18, 2007, 02:13:27 AM »
Welcome to our community.  We are glad you decided to join us.  This is just the place to be when you are dealing with this renal challenge.  There is lots here that can help you.  It is even a place to vent when you need to.  So please take advantage of all this site has to offer.
My daughter and 4 year old grandson live with me, so I know the grandparent feeling!  We want to be around to see them grow up!


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #12 on: August 18, 2007, 09:35:18 AM »
 :waving; Hi Dave,
And hello to your wife too, from another caretaker (I hate that word, we need a better one) - so glad to hear you're doing well, despite dialysis! Welcome to IHD!

okarol, moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
keefer51
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« Reply #13 on: August 18, 2007, 08:30:59 PM »
 :welcomesign;
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
Jill D.
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« Reply #14 on: August 18, 2007, 08:37:38 PM »
 :welcomesign;
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
mj
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« Reply #15 on: August 19, 2007, 03:28:34 AM »
Hey Dave.  Welcome.  Sounds like your grandchildren are very lucky to have such a loving and doting grandfather.


MJ
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tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #16 on: August 19, 2007, 04:15:02 AM »
 :welcomesign; Dave 

See you around the forum

Take Care

Tamara xxx ooo   :cuddle;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
del
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del and willowtreewren meet
« Reply #17 on: August 19, 2007, 08:36:27 AM »
 :welcomesign; dave.  Great that you are on home dialysis!!  Hubby has been on dialysis for 10 years. Started with pd. That worked for about 2.5 years. had an awful experience with it.  Then he did in center hemo for 6 years.  Started nocturnal home hemo last Oct and that has been the best. No travel and you are in control.  God luck!!
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Don't take your organs to heaven.  Heaven knows we need them here.
Hawkeye
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« Reply #18 on: August 19, 2007, 10:49:51 AM »
Hello and  :welcomesign;
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It's not easy being green.
SpeedFleX
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« Reply #19 on: August 19, 2007, 11:00:12 AM »
 :welcomesign;
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Sluff
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« Reply #20 on: August 19, 2007, 02:39:04 PM »
Welcome to IHD Dave,

I'm glad to hear you are using nxstage. Have you visit our website  www.ilovenxstage.com

I'm glad you found us and I am looking forward to your posts.

Sluff/ Admin
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Zach
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"Still crazy after all these years."
« Reply #21 on: August 19, 2007, 02:41:14 PM »
Good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #22 on: August 20, 2007, 07:34:42 AM »
 :welcomesign;
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Ken
brenda
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« Reply #23 on: August 20, 2007, 08:19:12 PM »
Welcome Dave!   :waving;
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Life is what happens while your making other plans.
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