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Author Topic: Update to the "I feel weird"  (Read 3101 times)
donnia
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me and my donor Joyce

« on: October 28, 2007, 01:55:53 PM »

I am still having the weird feeling in my throat.  I was given steroids last week at the ER (Tuesday of last week... took them for 5 days).  I have not seen any relief.  I have noticed that when I wake up now my face is VERY swollen.  It was like that last week and early this week, but I figured that was from the steroids.  I have been off the steroids for a week.  Don't you think the swelling would have stopped by now???  Also, it affects my vision.  I have perfect vision, and now when I look to my left, my left eye gets kinda blurry.  It also kinda feels "stressed".  It does not feel normal.  Almost like  my eye is bulging out.  Also, my head feels heavy.  If I lean down for anything,  I just feel yuck.   Oh yeah, If I do anything that takes the slightest bit of energy, my heart starts beating fast.

Any ideas of what it could be???  I know.... lots of symptoms :)
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
kitkatz
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« Reply #1 on: October 28, 2007, 01:58:24 PM »

IMO You need to go back to your doctor.   You have too many symptoms that seem strange.
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2_DallasCowboys
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« Reply #2 on: October 28, 2007, 02:04:36 PM »

Donia,

I hope you call your Dr - don't wait.  You may
be having a reaction to some med, or goodness knows
what-  I would put in a call to primary Dr and then the
Nepth- now. 
Please don't wait!

Anne
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okarol
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« Reply #3 on: October 28, 2007, 04:17:43 PM »

Hi donnia -
I can't help but think it may be related to your permacath. A young woman at Jenna's dialysis center had similar symptoms and it had to do with the fluid not draining from her head/neck - apparently there was scar tissue. She had pressure in her throat and eyes, and a "heavy head." I could be wrong, but it just seems very similar. I hope you get some relief soon!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
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donnia
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me and my donor Joyce

« Reply #4 on: October 28, 2007, 04:21:52 PM »

Hi donnia -
I can't help but think it may be related to your permacath. A young woman at Jenna's dialysis center had similar symptoms and it had to do with the fluid not draining from her head/neck - apparently there was scar tissue. She had pressure in her throat and eyes, and a "heavy head." I could be wrong, but it just seems very similar. I hope you get some relief soon!  :cuddle;


Thank you soooo  much for saying this!!!  I am convinced that it is because of my permacath!  I can't get anyone else to listen tho.  I have talked to my neph, my surgeon, the idiots at the ER, and my primary.  At least my primary is trying!  I will call them tomorrow morning!

Thank you    Thank you    Thank you!
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Chris
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« Reply #5 on: October 28, 2007, 04:23:37 PM »

I would also put a call into your eye doctor to have the eye pressure checked. There are drops to help releve the pressure. Hopefully it is what okarol thinks and it can be corrected.
« Last Edit: October 28, 2007, 04:28:53 PM by Chris » Logged

Diabetes -  age 7

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Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
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1st Dialysis - July 4, 1999
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donnia
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me and my donor Joyce

« Reply #6 on: October 28, 2007, 04:25:50 PM »

Good idea.  I am worried about my vision.  I will call an eye doctor.
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
silverhead
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« Reply #7 on: October 28, 2007, 08:43:00 PM »

Sharon started having "double Vision" problems and it was finally traced to her having "Giant cell Arteritis", an ophthalmologist was instrumental in the finding (along with a biopsy of the veins in her head), heavy Prednisone (80mg) cured it, but almost 2 years later she is still on the pred (only 3.5mg now)
it doesn't sound as if this might be your problem, but one never knows.....
Tom
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