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Author Topic: Hi! I am new to the board.  (Read 4260 times)
cbarge
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« on: July 15, 2007, 06:42:59 PM »
Hi! I am Carol.  I am new to dialysis.  I had a transplant on 11/05 (cadaveric) and it started rejecting in January.  I am now on Hemo 3x a week.  Hopefully my sister/bro will still be a match so I can try transplant again.

I am a teacher so I am anxious as how this (diaylsis) will fit into our lives.   I have 2 children and at the moment my husband works in a different part of the state than where we live. 

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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: July 15, 2007, 06:52:53 PM »
:waving; Hi Carol (good name!)
Sorry about the rejection - I hope your sister can help you.
Welcome to IHD - it's great place to find friends and info.
We have a few pretty special members who are teachers too!
All the best,
Karol


okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
lola
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I can fly!!!
« Reply #2 on: July 15, 2007, 08:15:51 PM »
 :welcomesign;
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www.caringbridge.org/visit/ottomachado
kelliOR
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« Reply #3 on: July 15, 2007, 08:36:15 PM »
Hello Carol, and Welcome!  Its got to be hard dealing with rejection, and I'm sorry that happened.  Remember, you can LIVE with dialysis.  Hopefully, your sibs can match you.  In the meantime, take great care of yourself!  This is a great forum filled with info, wisdom, and humor.  Good luck to you,  hugs, kelli  :)
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Shoot for the Moon.....Even if you miss, you'll end up among the Stars ........


Denied PKD for years (Boy, was I good at it!)
Dragged kicking and screaming to dialysis (in center hemo)
Transplant from a friend March 24, 2006 at OHSU
st789
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« Reply #4 on: July 15, 2007, 10:15:18 PM »
Wish you a quick match in finding the donor.  What do you teach by the way and is dialysis making it harder to handle the pressure of teaching?  Lastly, what is the reason for the kidney rejection in the first place?
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Joe Paul
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« Reply #5 on: July 16, 2007, 12:08:06 AM »
Welcome Carol, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Sluff
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« Reply #6 on: July 16, 2007, 04:40:45 AM »
Hi Carol and welcome to ihatedialysis.com

I hope a new kidney from your family lasts you a lifetime. Lets all hope your next one is a perfect match.

We have many transplant stories in the transplant section here: http://ihatedialysis.com/forum/index.php?board=27.0

Thanks for taking an interest in IHD and I hope we are helpful to you in gaining confidence and knowledge.


Sluff/ admin
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KT0930
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« Reply #7 on: July 16, 2007, 04:53:14 AM »
 :welcomesign;
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Laurie
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May 13, 2008
« Reply #8 on: July 16, 2007, 05:00:18 AM »
 :welcomesign; Glad you found this site.
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Hawkeye
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« Reply #9 on: July 16, 2007, 07:30:49 AM »
Hello and  :welcomesign;
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It's not easy being green.
kitkatz
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« Reply #10 on: July 16, 2007, 09:33:16 AM »
I am one of the teachers here on the board. I still work full time in the classroom.  Welcome to our site.   My words of wisdom: Take care of you as much as you can.  Rest and get good sleep.  Eat well. Ask questions of us and of your doctor and team.

 :welcomesign;



kitkatz,moderator
« Last Edit: July 16, 2007, 11:18:00 PM by kitkatz » Logged


lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
rimbo74
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My older brother and me (I'm on the right)
« Reply #11 on: July 16, 2007, 03:44:39 PM »
Welcome Carol!   :welcomesign;
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1986 - Diagnosed with Alport's Syndrome
10/29/06 - Told Kidneys failed
02/07-07/07 - PD Dialysis
07/31/07 - Kidney Transplant (donor was my older brother)
keefer51
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« Reply #12 on: July 16, 2007, 07:40:19 PM »
Hi Carol. Welcome to this site.
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #13 on: July 18, 2007, 04:22:54 PM »
Welcome to our community, from another member of the teaching fraternity, or should I say sorority? ;D  This is a great place for you to be. There is so much on this site.  You can even add to our ongoing soap opera - Sam's Story.  There is  much to take advantage of.  Keep reading and reading and keep posting and posting.  We are family and we need to know how you are doing.  As I said in another post - not nosy, just caring.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Ohio Buckeye
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« Reply #14 on: July 20, 2007, 06:59:55 PM »
Hi Carol

Welcome to the IHD Family!
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If I must do this to live, I must strive to live
while I am doing this.
del
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del and willowtreewren meet
« Reply #15 on: July 21, 2007, 06:27:02 PM »
Hi Carol and  :welcomesign;,  I am a teacher too.  My hubby is the one on dialysis.  Will be 10 years next month. Has done PD, in center hemo and now nocturnal home hemo.
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Don't take your organs to heaven.  Heaven knows we need them here.
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #16 on: July 22, 2007, 02:10:17 AM »
Hi Carol,

Nice to meet you!

Plenty of Teachers on this board that can probably help you out and get used to what you have to face.

Hope another transplant can work out for you.

Hope to see you around the board.

Take Care

Tamara xxx ooo  :waving;  :grouphug;  :cuddle;  :beer1;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Wattle
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« Reply #17 on: July 22, 2007, 05:28:04 PM »
 :waving; Welcome Carol.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Zach
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"Still crazy after all these years."
« Reply #18 on: July 29, 2007, 05:22:48 AM »
Good to have you with us!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
donnia
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me and my donor Joyce
« Reply #19 on: July 29, 2007, 09:58:11 AM »
Hi Carol
 :welcomesign;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
sophiasmom
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In center hemo for almost 10 years

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« Reply #20 on: July 31, 2007, 01:19:54 AM »
Hey Carol

Welcome to the IHD family, glad to have you with us.
Dialysis sucks, but together we all make it through!   :yahoo;
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