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Author Topic: Well, now there's going to be two of us  (Read 4581 times)
Adam_W
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Me with Baron von Fresenius
« on: July 30, 2007, 07:35:08 PM »
We just found out today that my grandmother is only weeks away from dialysis. We've all known it was coming for a long time, but it's still hard for all of us to know it's pretty much here. She went and visited the dialysis centre that she's going to be going to, and she met some of the nurses there. She will be going to the same centre her sister was at, and some of the nurses remember her from then. She wants to start out in-centre, but she would like to eventually switch to NxStage (she would have the same training nurse that I have). It's been especially hard I think for my mother because she's literally right in the middle, with her son (me), and now her mother both on dialysis. Please keep my grandmother and the rest of us in your thoughts and prayers, because even though I've been on dialysis myself for six months, it has still hit all of us like a freight train.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
jbeany
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Cattitude
« Reply #1 on: July 30, 2007, 08:14:42 PM »
That stinks, Adam! 

 :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
goofynina
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He is the love of my life......
« Reply #2 on: July 30, 2007, 10:08:42 PM »
Sorry to hear that your Grandma will be having to do dialysis too Adam but it sounds like she knows what she is in for huh?  that's a good thing at least and she has YOU to help her too  :clap; 
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
sophiasmom
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In center hemo for almost 10 years

WWW
« Reply #3 on: July 31, 2007, 01:23:37 AM »
God Bless Adam.
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Joe Paul
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« Reply #4 on: July 31, 2007, 02:08:42 AM »
Gee, sorry to hear it Adam.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
keefer51
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« Reply #5 on: July 31, 2007, 02:43:09 AM »
Sorry to hear that man. I hope all goes well.
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #6 on: July 31, 2007, 03:07:09 AM »
Sorry to hear that Adam. That is a real bummer.
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Ken
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« Reply #7 on: July 31, 2007, 04:03:17 AM »
So sorry to hear this Adam.
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Amanda From OZ
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« Reply #8 on: July 31, 2007, 07:37:56 AM »
Thats Sucks Adam. Sorry to hear it.  :thumbdown;
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Ohio Buckeye
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« Reply #9 on: July 31, 2007, 08:46:50 AM »
I'm sorry Adam.
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If I must do this to live, I must strive to live
while I am doing this.
donnia
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me and my donor Joyce
« Reply #10 on: July 31, 2007, 10:51:41 AM »
Adam, you and your family are in my prayers.  :grouphug;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Wattle
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« Reply #11 on: July 31, 2007, 05:43:10 PM »



 :cuddle;  I am sorry to hear that Adam. She's lucky to have you to guide her through it all. I am sure you will be a great comfort and inspiration to her to keep going.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
MyssAnne
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« Reply #12 on: August 01, 2007, 04:32:13 AM »
Oh Adam. That is just crushing news for you and your mom. As everyone else saying, I'm glad you're going to be there for her, let her
know what's normal, and what to expect.  Are you all in the same area? If so, that's even better, you can give physical support as well
as emotional support.  :grouphug;
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Sluff
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« Reply #13 on: August 01, 2007, 04:38:23 AM »
This has been heavy on my heart Adam. I was thinking of my Mom and how scared she was when she became sick and even though you have the same disease, somehow our generation has a way of understanding the process more than our parents and grandparents do, probably because of technology and what we learn from IHD. My prayers are with you and your grandma.
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Adam_W
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Me with Baron von Fresenius
« Reply #14 on: August 01, 2007, 07:25:43 AM »
Thanks for all the kind words. I talked to her yesterday, and she asked me a lot of questions about what dialysis is like, and now that she knows a little more of what to expect, she's not quite so scared. It also helps that she already knows a lot of the nurses and techs  at the centre she will be going to. She's a very strong person, and we know that she's going to be fine, but it's still kind of scary right now. Again, thank you for all the support.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
st789
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« Reply #15 on: August 01, 2007, 10:03:08 AM »
My prays and thoughts are with her and your family.
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