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Author Topic: Introducing Myself  (Read 2749 times)
Melp
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« on: June 30, 2007, 05:50:11 PM »
I found your website by accident today and I am blown away by the information, community and warmth on the site.  I feel like I have lost a friend in Epoman already....

I am a caregiver, wife of 26 years to Bill.  He went on dialysis in March 2007 and started on CCPD on Memorial Day weekend.  He is doing pretty well on it, but has had a rough 3 1/2 years prior. Sounds like that is the norm in the dialysis world.  He has had type II diabetes since he was 26 and didn't take very good care of himself.  Now at 47, dialysis is his reality.  We met at 16, married at 20, so I am in for the long haul. It is very hard sometimes to remember to take care of myself too.  But I love my husband and will do anything I can to make his life better and easier.  Bill doesn't have much energy.  I work full time, am on intermittent FMLA so that I can come and go as needed.  I have to admit, I feel like I am always waiting for the next crisis.  For awhile there, he was in the hospital monthly for one thing or another.  Bill tries to keep his spirits up with distractions, but he is home alone all day.  Maybe I can convince him to join this forum also.  Thank you for being there.
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Wife/Caregiver - married to Bill on dialysis (first hemo now CCPD) since March 07
livecam
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World's Best Beach..Lanikai..Oahu, Hawaii
« Reply #1 on: June 30, 2007, 06:12:54 PM »
Welcome to the site Melp.  What you are going through sounds very familiar.  I hope you are both working toward a transplant for Bill.  A good transplant will turn things around for both of you in pretty spectacular fashion.

Best of luck to you and I hope to hear much more from you.
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Melp
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« Reply #2 on: June 30, 2007, 06:16:42 PM »
Bill has been on the transplant list since August 2006.  No family is available.  Bill is a type O, but has antibodies from transfusions that are making him difficult to match.  We got the call in October 06 but is was a dry run, he was primary, but didn't match.  We are hopeful that it will happen.  Unfortunately, he has other medical problems that a transplant won't fix.  More on that another time.  Thanks!
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Wife/Caregiver - married to Bill on dialysis (first hemo now CCPD) since March 07
Wattle
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« Reply #3 on: June 30, 2007, 06:35:05 PM »


 :waving; Welcome
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
KT0930
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« Reply #4 on: June 30, 2007, 06:38:02 PM »
 :welcomesign;
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Laurie
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May 13, 2008
« Reply #5 on: June 30, 2007, 07:38:39 PM »
 :welcomesign; Glad you found this site.
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
kitkatz
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« Reply #6 on: June 30, 2007, 08:06:37 PM »
Welcome. There are a lot of us old married folk on this site.  Yes, it is hard work to keep up with kidney disease.   :welcomesign;




kitkatz,moderator
« Last Edit: July 01, 2007, 10:11:52 PM by kitkatz » Logged


lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #7 on: June 30, 2007, 08:45:29 PM »
Welcome to our community!  We are so glad that you found us.  This is the place to be for anyone facing this renal challenge.  We already have quite a number of members who are here because of their spouse's renal challenge.  I am always gratified when loved ones care enough to join us to be of help.  There is quite a lot going on at this site.  Take your time and read and read and read, then post and post and post.  Ask questions, rant when you have to.  Here is a group people who UNDERSTAND what you are going through.  I am looking forward to hearing lots from you.  A group hug from all of us -  :grouphug;
Yes, please encourage your husband to join us.  It can only help.

Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
angela515
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i am awesome.
« Reply #8 on: June 30, 2007, 09:06:25 PM »
 :welcomesign; :grouphug;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
keefer51
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« Reply #9 on: June 30, 2007, 09:40:21 PM »
Welcome to this site.
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
Joe Paul
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« Reply #10 on: July 01, 2007, 12:52:03 AM »
Welcome Melp, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Zach
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"Still crazy after all these years."
« Reply #11 on: July 01, 2007, 04:24:56 AM »
It's real good to have you here Melp!  I hope Bill joins, too.
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Sluff
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« Reply #12 on: July 01, 2007, 11:56:33 AM »
Welcome to IHD Melp,

You have one of the hardest jobs by being caretaker and wife. We have a great caretaker section that might help you share your experiences with others faced with the same problems here: http://ihatedialysis.com/forum/index.php?board=33.0

Thank you for joining our site and I hope you gain knowledge, support and friendship.

Sluff/ Admin
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kelliOR
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« Reply #13 on: July 01, 2007, 06:24:48 PM »
Hi Melp,

Glad you found this site, and happy for Bill, that he has you at his side   :)

Hugs, kelli
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Shoot for the Moon.....Even if you miss, you'll end up among the Stars ........


Denied PKD for years (Boy, was I good at it!)
Dragged kicking and screaming to dialysis (in center hemo)
Transplant from a friend March 24, 2006 at OHSU
Hawkeye
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« Reply #14 on: July 03, 2007, 10:47:21 AM »
Hello and  :welcomesign;
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It's not easy being green.
MyssAnne
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« Reply #15 on: July 03, 2007, 11:14:42 AM »
Welcome, Melp, and Bill!!  I hope Bill does join, so he can find comfort in company that knows what he's going through, as you will with
others that are like you too. They're here, they know what you are going through too!   :welcomesign;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #16 on: July 06, 2007, 05:47:09 PM »
:waving; Hi Melp!
You sound like a devoted caregiver - Bill is a lucky man!
Hopefully he will stabilize and you both can relax a little.
Tell him to get on here and say hello!
Hope to hear more form you both!

All the best,
Karol


okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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