Out of words

[SweetyPie]

Hi all,

If you haven’t already look at my pervious to get an update of me after the hospital.
I couldn’t sleep last night it’s my chest, there’s fluid in there and it causes me pain. There’s constant fluid in there no matter how much we remove. I can’t get a fistula because of my pressures despite the blood pressure meds it still drops. I’m on the list but no answer as of now. The doctor was stumped he didn’t know what to say but he will check out my ct scans. The whole reason I went to the er was because of chest pain. I found out later I had an infection. They called it pleural effusion when I went to the er. They saw that on the scans and saw it improve a little after a few days.
I’m lost everyone’s lost. I wish I didn’t feel so crappy after the hospital. Not to mention my body aches are on another level. And for 3 days now the pain on my thumb has been awful and I’m unable to bend it... new problems with no answer

[Cupcake]

Hang in there. Hopefully they can help solve your problems, or at least give you some definitive answers so you know what to expect. Keep us posted.

[kickingandscreaming]

Good luck to you, Aaisha.Dar.   This too shall pass.

[cassandra]

O Aaisha I'm so sorry to read that.  Please remember you might be feeling worse BECAUSE of the anti-biotics too.


Lots of love and healing vibes, Cas

[SweetyPie]

You have a good point. I’m not sure tho about my chest this was before the antibiotics

[Michelle2016]

Please make sure to take antibiotics with A lot of food and water or juice.   Otherwise you may feel very nauseous. Keep taking antibiotics and you’ll feel better everyday.

Wish you the best.

[SweetyPie]

Antibiotics are given during dialysis so I get them regardless lol

[UkrainianTracksuit]

*sigh* Aaisha, honey, not the reply I wanted to read but wanted to send you some good thoughts nonetheless.

[MooseMom]

I am so sorry to read about all of your travails.  It must be so very frustrating and frightening.  I am hoping that the other IHDers are right in thinking that maybe it is the antibiotics that are making you feel bad right now and that yes, this too shall pass.

[SweetyPie]

All this support is very touching really. My doctor kinda just sighed and was like hmm.. it’s actually very scary. This chest pain and feeling of fluid in my lungs makes me confused, sad, and out of breath. I can’t explain how difficult this is.

[Riki]

My thinking is, and remember that I'm not a doctor, if you have a chest infection, you are probably going to have a little fluid around it.  As the antibiotics do their job, this fluid should go away.  Unfortunately, until this happens there is little that you can do about the pressure the fluid causes.  Best advice I can give is to not do anything to strenuous until after the infection clears

[SweetyPie]

The infection is gone and I am off antibiotics. I blamed the bad chest feeling on the infection but now that it’s clear and I still feel short of breath and pressure on my right side when I even slightly lean forward it it’s scaring my family and they keep asking if I want to go to the er. They said fluid in the lungs is dangerous and a huge lecture. I don’t want to go to the er they poke me and say we can’t do anything about the fluid in your lungs I don’t have a fever just a feeling if uncomfortableness. I wish I had an answer. My nurse checked my right side she said she heard diminished breath sounds

[MooseMom]

What does she mean by "diminished breath sounds", and what did she suggest you do about it?   I am glad to hear that the infection is gone, though.

[SweetyPie]

She said diminished breath sounds means fluid in the lungs. She wants me to go to the er but I told her if I feel worse I will. I think the doctors at the hospital also didn’t do much about the fluid in my lungs because they thought it was the infection. My nurse said from two weeks ago she still hears the fluid on the right side. Do you guys think this is dangerous for me to wait it out? Yes I feel short of breath and yes my right side has a lot of pressure but the number one thing is I do not have a fever.. thank God. This feels like a waiting game

[Charlie B53]

You are balanced on a tightrope and about to fall off.

If there is still fluid in your lungs with NO infection then your Dry Weight is still set slightly too high.

You may not like this idea but you need to begin removing just a little bit more fluid at every treatment.

Start reducing your dry weight just one or two TENTHS.  Not a lot, just that little but.  After a couple three treatments have the Nurse listen again to your longs to see if she can hear a reduction in the fluld level. Then make another small reduction in your dry weight.  This is not going to get cleared over night, it is going to take a couple of weeks of careful atention as too great a change could easily be too much shock to your small body.

[SweetyPie]

That makes somewhat of sense. I did lose quite some weight at the hospital. Will ask my nurse to lower my dry weight. We will see how this goes. Thank you

[Rerun]

Hang in there.