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Author Topic: We have lost another one.  (Read 2820 times)
Charlie B53
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« on: February 18, 2019, 05:38:20 AM »

Sadly, my clinic lost another one over the weekend.

As I came in this morning there are Flowers and a note on the Reception counter.

Frank sat in the chair next to me.  Always had a smile and pleasant greeting.

RIP Frank, you have earned the Rest.

Prayers for Family as this was very unexpected.
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kristina
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« Reply #1 on: February 18, 2019, 06:24:36 AM »

Hello Charlie, I am so sorry to read about your dialysis-neighbour Frank.
... Whenever one of us can't go on any longer, it hits us very much and also brings it clearly home to us, how dangerous ESRF is and in what a dangerous situation ESRF eventually may bring us into  ...  :grouphug;
« Last Edit: February 18, 2019, 06:26:25 AM by kristina » Logged

Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
UkrainianTracksuit
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« Reply #2 on: February 18, 2019, 07:18:44 AM »

Really sorry to hear this, Charlie. This is one of the worst parts of dialysis. We develop a sort of camaraderie with our chair mates, knowing we are in this lot for a reason, and it hurts when one of them is missing. Frank is free now.  :grouphug;
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SooMK
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« Reply #3 on: February 18, 2019, 10:15:28 AM »

I'm so sorry.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
MooseMom
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« Reply #4 on: February 18, 2019, 10:26:57 AM »

This is very sad news.  Condolences to everyone who loved Frank.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Riki
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« Reply #5 on: February 18, 2019, 11:50:25 AM »

We had two in the last week.  One, Sheldon, has Cystic Fibrosis, and was in his mid 40s, so he lived a lot longer than was probably expected of him.  The other, Carol, was in her mid 50s.  She also had heart issues.  With her passing, I am the only one left from the old clinic that closed in 2013.  The rest have either died or have been transplanted.  It's a little weird for me.

I expect another soon.  These tend to go in 3s
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Paul
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That's another fine TARDIS you got me into Stanley

« Reply #6 on: February 18, 2019, 12:40:13 PM »

My Sympathies.

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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
Rerun
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Going through life tied to a chair!

« Reply #7 on: February 18, 2019, 03:10:30 PM »

RIP Frank.  Prayers for your family.

 :grouphug;
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kickingandscreaming
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« Reply #8 on: February 18, 2019, 03:45:27 PM »

Sadly, we will all eventually go the way of the Franks of the world.  May we stretch it out as much as possible.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
kitkatz
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« Reply #9 on: February 18, 2019, 08:50:30 PM »

It does bring it home that this is a disease that can and will eventually take us out.  MY sympathies to you and your center.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
cassandra
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When all else fails run in circles, shout loudly

« Reply #10 on: February 19, 2019, 05:07:30 AM »

 :grouphug;


 :grouphug;


 :grouphug;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
GA_DAWG
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« Reply #11 on: February 19, 2019, 09:49:59 AM »

Sometimes we get into the routine of dialysis and forget the possibilities, though it seems it is far too quickly driven home again for us in this way. We also lost one of ours. He had had a heart attack a couple years earlier, but hd seemingly gotten past that. He began to have more and more difficulty making tit through a session. He had a really bad one on a Wed, and was not here on time of Friday. He came in late, obviously not for a treatment. He stopped by the chairs of some of us to tell us he had gone to the doctor after that really bad treatment, and they had discovered something worse. I presumed cancer though he never said explicitly and I did not want to ask. He had asked the doctor if he had to continue dialysis, and been told it would only make a matter of a week or two difference. I don't know if it was the lack of dialysis or his owther problem he succumbed to, but he was gone in only a couple of weeks. It feels so wrong to say at least he did not suffer a long time, but at times I don't know how else to put it.
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Michael Murphy
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« Reply #12 on: February 19, 2019, 04:31:55 PM »

This seems to be what Bill Peckham was showing us live each day to the fullest and enjoy your life to the fullest, with a little of Satchel Page don’t look back to see what’s catch up.
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Riki
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« Reply #13 on: February 20, 2019, 08:31:46 AM »

This seems to be what Bill Peckham was showing us live each day to the fullest and enjoy your life to the fullest, with a little of Satchel Page don’t look back to see what’s catch up.

That is what I try to do.  It's why I travel, it's why I went back to school.  I want to do as much as I can now, while I'm able, because you never know how long that will last.

I lost my first fellow patient when I was 12.  It was a 5 yr old boy who'd been transplanted.  He'd only had the kidney about 2 weeks, and he was just learning how to live with one, because he never had before.  There was a complication, the way it was explained to us was that the kidney his mother gave him was too big for him.  That was probably the simplest explanation to give to a group of kids who wanted to know what happened to their friend.  It was then that I realized just how serious this disease is and what happened to him could happen to any of us.  It's a lessen most of us don't learn until we are adults.  It's stuck with me nearly 30 years, and I still think about him, and others I've lost along the way, every once in a while.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
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