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Author Topic: Fistula  (Read 2898 times)
tigmonster1968
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« on: June 28, 2018, 02:18:08 PM »
Hi all, I just got home from bringing my bf to the vascular surgeon.  The Dr said that the fistula he created is now mature.  I dont know why Im excited about this but I am.  I guess now the center can test it out and then I will start training to be his care partner for home hemo..?  My bf is legally blind so basically I will be doing it all....can anyone give me some words of advice, what to expect, negatives, positives, funny stories...whatever you got!


Scott's girl
Jodie
 :bandance;
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GA_DAWG
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« Reply #1 on: June 28, 2018, 04:12:36 PM »
I was told it would not be quite so hard and I would feel better after I got a fistula, which turned into a graft. I was pleasantly surprised to find they were right. Good luck to you guys.
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cassandra
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When all else fails run in circles, shout loudly
« Reply #2 on: June 29, 2018, 03:02:24 AM »
If I were you I would ask bf if you can feel his fistula as if you were a nurse. Get to know 'it'. Ask where it's extra tender. Where it feels straight. Do I understand correctly that he will get button holes? If poss you and the nurse discuss where to go. Use Emla cream/spray (numbing)


Good luck, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
tigmonster1968
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« Reply #3 on: June 29, 2018, 06:14:51 AM »
Not sure if he is getting buttonholes, I'm excited and scared at the same time.  I guess next step is to get with his nurse at dialysis.  Time to learn more!
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Cowdog
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« Reply #4 on: June 29, 2018, 06:42:42 AM »
The "Sticking" is the biggest fear and the task to master. Google "Stuart Mott cannulation". Lots of good info and his techniques work!!
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Hemo in Center since 11/2008
Self Cannulate since 2011
In Center Self Care since 2012
cbatsea
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« Reply #5 on: June 29, 2018, 05:04:56 PM »
You will be "in training" for some time....there's A LOT to learn.  I've been hubby's caregiver for 2 years now....I still get nervous..and I absolutely HATE sticking him.  We are doing "buttonholes" but he heals so quickly, it's been a long road.  His arterial buttonhole is good....his venous is a bitch.  We have been working on it for 2 months.  Sometimes, it's a breeze...sometimes, I still have to use a sharp  needle on it.

Stay strong.  This is a long-term thing.
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MooseMom
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« Reply #6 on: July 01, 2018, 11:05:18 AM »
Quote from: cbatsea on June 29, 2018, 05:04:56 PM
You will be "in training" for some time....there's A LOT to learn.  I've been hubby's caregiver for 2 years now....I still get nervous..and I absolutely HATE sticking him.  We are doing "buttonholes" but he heals so quickly, it's been a long road.  His arterial buttonhole is good....his venous is a bitch.  We have been working on it for 2 months.  Sometimes, it's a breeze...sometimes, I still have to use a sharp  needle on it.

Stay strong.  This is a long-term thing.

I really admire anyone who sticks a spouse/partner.  It would be so easy to just say "no".  You're a hero in my book.  Your hubby is very fortunate.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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