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Author Topic: Young patients???  (Read 3742 times)
AaishaDar
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« on: August 11, 2017, 10:57:14 PM »
Jusy wanted to know if anyone here is 21 or younger?? I havent met anyone my age and would def like to. Not that older people are bad lol I just dont relate as well.
Been dealing with nephrotic syndrome starting at the age of 6. I wanna know your story :)





EDITED:Moved to general discussion -kitkatz,Admin
« Last Edit: August 13, 2017, 12:48:00 AM by kitkatz » Logged
smartcookie
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« Reply #1 on: August 14, 2017, 12:58:08 PM »
We have had a few come and go through the years, but a lot of patients that young get transplanted very quickly.  I know that Riki was on dialysis when she was very young and Kristina almost landed on dialysis at around 17.  Okarol's daughter was on dialysis at that age and has had two transplants now.  If you look back in the forum, you will find more.  There might be more younger people on the Facebook page, but I am not part of the Facebook group. 
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I am a renal social worker.  I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
JW77
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« Reply #2 on: August 19, 2017, 10:12:58 AM »
You'd be welcome to join the 'YoungNKF Facebook page'  although its UK based.

https://www.facebook.com/groups/524969824300628/
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Creator of London Kidney Social: https://www.facebook.com/groups/LondonKidneySocial/

Medical stuff, includes 3 kidneys, cancer, meningitis, 1 heart attack and its long and not that interesting! Maybe one day I'll write a book.! `

I have an eclectic taste in music, I fly kites, I read, write, tog, blog and have a bit of a passion for multicellular eukaryotes, and kites.

Founder of Kites4Kidneys - Start making your kites for WKD 2015..
https://www.facebook.com/kites4kidneys
Shon1021
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« Reply #3 on: May 15, 2018, 10:00:57 AM »
Hello I’m 16 almost 21😂 so I can relate I was born with ARPKD and had a kidney transplant at 4 and am currently waiting on another one
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