meds payment

[babycake]

my son will be celebrating 3yrs in march
when he had his transplant
and his insurance wont cover
for his meds after that
my son is a special needs adult
and lives with my mom
and my older sister is his caregiver

i had ask my mom how would he get his meds
after
she stated i guess she will have to sell
her house
no for i know there are resources
out there
does anyone have a list
so that way i can be ahead
of the game when its time for my son
when his insurance runs out on his meds

[Michael Murphy]

Speak to your doctor,  if your son has a significant deficit  he could be eligible for additional Medicare and Medicaid coverage,  if your son can’t work due to other problems  see your doctor for a diagnoses then fill in your paper work go Topo SSA and apply under the new disability and his drugs will be covered.  If you are turned Dow get a lawyer.

[babycake]

he has the state programs insurance
and yes he gets ssi

[Michael Murphy]

Again if he has a disability other than ESRD he should be eligible for Medicare even though it’s 3 years post transplant.  The other disability qualifies him to receive Medicare and Medicaid.  If I was you I would go to a  lawyer who does SSA cases and have home review your sons case.  I believe he will have his meds paid for because of the other disability.  Good Luck.

[Tío Riñon]

Michael Murphy provides good advice.  I encourage you to follow it.  Additionally, work with your transplant social worker and/or insurance counselor to consider other possible resources.  Your transplant center isn't going to permit a kidney to essentially go to waste due to funding issues post-transplant.  The American Kidney Fund (http://www.kidneyfund.org/financial-assistance/) might provide funding and may also have suggestions too.

Seek out advocates and work with them.  Good luck.