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Author Topic: Prednisone  (Read 18577 times)
Blake nighsonger
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« Reply #50 on: August 10, 2017, 02:43:55 PM »

I had a doctor who told me Prednisone over the long term could help with kidneys, but if your kidneys are borderline and you take it, it could cause ESRD. Just before mine failed, I was given prednisone. Of course, there was no way of knowing I was on the brink of ESRD.
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AaishaDar
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« Reply #51 on: August 17, 2017, 12:54:27 PM »

If youre on prednisone and you dont feed your hunger meaning you eat healthy normal portion meals do you still gain a lot of weight? I was on it as a kid and i was chubby dont want to get like that again now that Im an adult.
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smartcookie
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« Reply #52 on: August 17, 2017, 12:56:20 PM »

I think if you regulate your diet you are okay.  You might still have some facial puffiness, however.  That is from my experience.
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I am a renal social worker.  I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
Charlie B53
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« Reply #53 on: August 18, 2017, 05:11:07 AM »


When I was taking prednisone daily it increased my appetite which did drive me to eat more than I should have and gained weight.

It is a very difficult task to control your appetite.  Some people manage perfectly well.  I am not one of those people.
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AaishaDar
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« Reply #54 on: August 18, 2017, 12:52:29 PM »

Do you need yo stay on prednisone as long as you have a transplanted kindey???
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smartcookie
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« Reply #55 on: August 18, 2017, 02:38:55 PM »

Most people do, but not everyone.  When you first get your transplant you are on fairly high doses and then the doctor takes you down to a maintenance dose.  I have heard of a couple people being taken off completely, but I do not think that is the norm. 
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I am a renal social worker.  I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
Simon Dog
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« Reply #56 on: August 18, 2017, 03:37:54 PM »

My doc told me that when he was a renal fellow, his attending had a patient doing very well long term on an xplant with 5mg prednisone only.   They concluded the dose was so small as to not make a difference, so they discontinued it.    The kidney promptly failed.

The Xplant center I am using tells me that they use a "prednisone free" protocol, which really means prednisone for a few days only.
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AaishaDar
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« Reply #57 on: August 18, 2017, 04:34:27 PM »

I understand prednisone is extremely important but I really hate the side effects. Im very familiar with these medications but I cant remember the one that made me lose hair I believe it was cyclosporine.
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PrimeTimer
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« Reply #58 on: October 06, 2017, 10:11:17 PM »

I was just put back on Prednisone. Don't know how long I can last. Feel barfers and omg the pain. Feels like my kneecaps are being pried off with a crowbar and my arms pulled from their sockets. Breaking out in sweats. Red blotches on my face and then turned white as a ghost tonite. Just lost 33 pounds but oh well. HAD to go to Krispy Creme. Was the first time in over 5 years. Hubby said if you are going to be bad, make it worth it. I brought home a dozen just for tomorrow. Nope, not going to last like this.
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Charlie B53
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« Reply #59 on: October 07, 2017, 03:58:45 AM »


When gout flared up making most every joint in my body feel like it had sharp sand or glass chips in them the Dr's prescribed 10 MG 3 X Daily.  Other than the MASSIVE feeding, I didn't notice any other adverse side effects.  40 pound weight gain before I tapered off and quit taking it.

I have to admit I was skeptical about using prednisone for pain, and it did take almost a week to have a noticeable effect.  I was amazed that it did.  I didn't think anything would help me but a large bore bullet to my brain.
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Simon Dog
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« Reply #60 on: October 07, 2017, 11:50:40 AM »

Watch out for upper thigh/hip pain, and insist on an X-Ray and possibly MRI if you have it. 

It took three visits to my primary MD to get an X-Ray at which time I heard "Oh, you have AVN ... you're gonna need a new hip ... prednisone can do this".
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Charlie B53
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« Reply #61 on: October 10, 2017, 06:17:35 AM »


Insufficient blood flow to both hips and legs causes massive aches and pain with hardly any movement.  Multiple stents placed in both illiacs immediately after the main arterial 'Y' has relieved the majority of the leg problems however the small branches that feed the hips remain majorly occluded, thus still severely limiting movement before the onset of aches and pain.  X-rays do show what they are calling onset of arthritis. No movement, no pain.  I stay careful.
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PrimeTimer
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« Reply #62 on: October 11, 2017, 08:50:29 PM »

I've learned to take it more at the end of the day now with dinner instead of with breakfast. I have too much to do during the day to let pain and nausea get in my way.
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
PrimeTimer
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« Reply #63 on: November 01, 2017, 06:45:33 PM »

I tapered myself off. Had to. Couldn't take the side effects anymore. My hunger was out of control. Ate a lot of junk and got sick. Continued eating everything in sight anyways and surprisingly lost a few pounds. We recently moved and I've been doing a lot of unpacking and running around so maybe that explains the weight loss. But the hunger, OMG! Got the tiny red spots thing going on, too. Also breaking out in terrible sweats. Freezing one minute, water dripping from my hair the next. And itchy blisters on my hands. Antihistamines help with that. Just couldn't handle it anymore. Hats off to those who can.
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
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