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Author Topic: It's FRIDAY  (Read 2774 times)
Vt Big Rig
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« on: September 11, 2015, 05:08:08 AM »

I think it was Micheal Murphy who talked about thinking of treatments only one week at a time.

This  has helped my attitude greatly.
And it is FRIDAY and I am done for the week!! YEAH !!  :clap; :clap; :clap;

I hope all have a great weekend. :bandance; :bandance; :bandance; :bandance;
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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
Michael Murphy
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« Reply #1 on: September 11, 2015, 03:22:02 PM »

If you go on Saturday it's the end of your week and  you get two days off so celebrate the completion.  I started doing this as a joke, when I started the nurse who was treating me was taking out my needles and since it was Friday I told her I would not be coming back this center again this week. She began to argue that I had to come back, i repeated that I would not be back again this week,this went through seven iterations until she realized it was Friday.  Then it hit me I was done for th e week and it felt good I felt like I had completed something. Since then I worry about the treatments a week at a time.
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Simon Dog
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« Reply #2 on: September 11, 2015, 05:35:33 PM »

If you go on Saturday it's the end of your week and  you get two days off so celebrate the completion.
Vt Big Rig is a home hemo patient, so he will never get a two day celebration.  But, home hemo sucks only about half as much as in-center, so a one day celebration is enough.

As of 1PM tomorrow, I'm off until Monday AM.    I love these short gaps.   When circumstances force a longer gap (had a very rare 2 day one recently), I'm sufficiently concerned about not getting enough treatment to cancel out any ability to really enjoy the gap.
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kristina
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« Reply #3 on: September 12, 2015, 12:55:10 AM »

I do haemodialysis Saturday til 9pm
Same here ... and I am always very happy to have completed another successful week ...  :waving;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
cassandra
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When all else fails run in circles, shout loudly

« Reply #4 on: September 12, 2015, 02:40:35 PM »

I'm 'celebrating ' each and every day I'm still around on this planet. And I find the EOD schedule magnificent. Weekend every other day too. I've gained at least 2 kilo's in two weeks through celebrating with half a bottle of Baileys, and it's not fluid overload

    :cheer:        :beer1;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Vt Big Rig
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« Reply #5 on: September 13, 2015, 06:09:33 AM »

As Simon Dog said I am a home hemo patient BUT I do get two days off. After Thursday night we run again Sunday through Thursday. In the evening as we are  both still working.

My point was the freedom that the attitude espoused by Mr Murphy of taking it a week at time really helps me.

I am sorry if anyone still scheduled for Saturday was offended. Again not the point.
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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
Simon Dog
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« Reply #6 on: September 13, 2015, 10:05:48 AM »

An interesting thing about home hemo are there are so many choices - though my RN does not include two days off in a row as one of the choices.

I am going to nocturnal shortly, and am being given the choices of "5 nights/wk, 4 night/wk or 2 on-1 off schedules.
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Vt Big Rig
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« Reply #7 on: September 13, 2015, 11:10:40 AM »

My RN was not thrilled but when we pointed out that 5 days apparently was good during training for weeks, why not stay there. It increased the time some. But labs have been way above their "standard" so no problem.
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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
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