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Author Topic: AWESOME NEWS!!!!!  (Read 5702 times)
babycake
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« on: March 08, 2015, 10:14:15 AM »
my son just got his early birthday gift
this morning
my sister just called
to let me know
 that  he got his call
this morning
he got his match
 he getting his kidney
 as we speak

 :birthday;
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SooMK
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« Reply #1 on: March 08, 2015, 01:42:54 PM »
Wonderful news. Hope all goes smoothly.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
cassandra
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When all else fails run in circles, shout loudly
« Reply #2 on: March 08, 2015, 02:35:31 PM »
Great news, here's hoping all goes well

       :2thumbsup;


Love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
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« Reply #3 on: March 08, 2015, 11:21:45 PM »
 :birthday; Wowi! A beany baby! Good luck, lots of prayers sent your way!
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
kristina
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« Reply #4 on: March 09, 2015, 02:39:46 AM »
Great news!
Good luck wishes and all the best from Kristina  :waving;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Darthvadar
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« Reply #5 on: March 09, 2015, 04:09:42 AM »
Wonderful news!....  :bandance;  :yahoo; :bandance; :yahoo; :bandance;

Hope he recovers really well...

Thoughts and prayers for the donor family.....

Love...

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #6 on: March 09, 2015, 05:58:19 AM »
I love hearing good news!  :yahoo;

Here is to many years with his new kidney!

 :2thumbsup;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
babycake
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« Reply #7 on: March 09, 2015, 08:39:26 PM »
he got out of surgery at 2pm
and the doc  talked
to my mom
 to let her know
that the donor
was a guy  and he donated
all his organs
they were surprised
that the donor
only had one kidney
the doc said the kidney
was very healthy :thumbup;
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kristina
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« Reply #8 on: March 12, 2015, 02:15:12 AM »
Hello babycake,
I send you my best wishes and I hope everything goes alright.
Good luck from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Rerun
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Going through life tied to a chair!
« Reply #9 on: March 12, 2015, 09:09:40 AM »
YIPPEE!

            :flower;   PTL 
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babycake
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« Reply #10 on: March 12, 2015, 10:35:33 PM »
the kidney is still a little lazy
 my sister did ask the doc
what was the longest  person
who had a lazy kidney and was
still on dialyis
he stated 4months..
and that guy has had his kidney for over 2yrs

so my son still may
need dialyis for a few more weeks
depends on the kidney function
so far so good
its just being a bit lazy
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cassandra
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When all else fails run in circles, shout loudly
« Reply #11 on: March 17, 2015, 08:37:53 AM »

    :grouphug;

Thinking of you, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
babycake
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« Reply #12 on: March 19, 2015, 03:37:56 PM »
he went up
to portland today
for the routine blood check
and everything so far looks good
hes still drained of course

he came home monday
and i saw him on tues
on his birthday
he wasnt himself
which is normal
for anyone that
just had surgery
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Sugarlump
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10 years on and off dialysis
« Reply #13 on: March 21, 2015, 05:35:13 AM »
Tell him not to lose sight of the end product.
Most kidneys take time to wake up (mine took two weeks) I knew a girl who was in the bed opposite me in hospital whose kidney took nearly 5 months but it is still going strong today (5 years on!!!)
and it takes about 3 months to recover fully from the surgery...and start to feel human again  :waving;
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cassandra
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When all else fails run in circles, shout loudly
« Reply #14 on: June 08, 2015, 05:52:43 AM »
Any news?

Love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
babycake
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« Reply #15 on: June 19, 2015, 10:37:42 PM »
any news

well its been 3months
sense the new kidney
and everything
so far looka

AWESOME!!!!!!!!!! :bandance; :bandance;
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cassandra
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When all else fails run in circles, shout loudly
« Reply #16 on: June 20, 2015, 01:12:12 PM »


Great.  :cheer:         :cheer:
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
babycake
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« Reply #17 on: June 20, 2015, 06:09:29 PM »
this is funny
my son used to use
 BOUNCY  ball
when he was little
so he would bounce
around on it  in front of the tv
 when he would get excited
and then i think my mom  got rid of
the ball
 so  he has a thing when it comes
 to shows he likes to jump
well when he had his sugery
the doc said he cant jump
just the look on his face

and the other day my mom and sister
took him for his follow up
 and he got permission to jump
omg you should had seen his face

 :rofl; :clap; :yahoo;
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