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Author Topic: Greetings!  (Read 2507 times)
KidneysR4Wimps
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« on: May 17, 2015, 10:14:36 PM »
Greetings!

I just turned 41 this weekend and for my birthday I'm getting dialysis!  :birthday; I'm not sure if it's the best present I've ever receive or not, but I am grateful to have the option vs death.

4 years ago I was diagnosed with stage 4 CKD at 18% after an eventful trip to the hospital. My first attempt to get on the transplant list was met with a no and a suggestion to lose 100 lbs. I went back a year later and 140 lbs smaller only to be told no again because I don't have enough insurance. So I went to a different hospital, got listed, and here we are 5 months later.

I've chosen PD because I'm a pretty busy lady. I'm a wife, mom, a full time student in the healthcare field, Girl Scout leader, and a future grandma. I love my life.

I'm a little nervous about getting started, so I'm happy this forum exists.

Thanks for having me!
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Just call me MJ!
Bambino_Bear
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WWW
« Reply #1 on: May 17, 2015, 11:54:08 PM »
Welcome to IHD!

My husband also does PD and it works well for him.  There are lots of great PD threads in the home dialysis section.
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I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
Zach
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"Still crazy after all these years."
« Reply #2 on: May 18, 2015, 02:53:20 AM »
It's good the have you here!
Welcome.

 8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
cassandra
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When all else fails run in circles, shout loudly
« Reply #3 on: May 18, 2015, 07:16:11 AM »
Welcome to the site Kr4W

         :welcomesign;


Take care, and mighty impressive to loose 140lb in a year
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
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« Reply #4 on: May 18, 2015, 12:06:23 PM »
 :welcomesign; Welcome to the site, Happy Birthday and Kudos for your positive attitude and accomplishments! Good luck on PD. Given your lifestyle, sounds like it will be the best modality for you. 
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Rerun
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Going through life tied to a chair!
« Reply #5 on: May 19, 2015, 08:58:19 AM »
Hello, I'm so glad you found us.  Lots to read here.  I hope you do well with PD.

Welcome - Rerun, Admin.

 :welcomesign;
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Bayushi
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« Reply #6 on: May 19, 2015, 05:41:40 PM »
140 pounds in a year!?

I need your secret! I need to lose about 8-9 kilos to meet their weight requirement (still in the process of getting on the transplant list), and while hemo takes off a fair bit per session, I tend to gain most of that back before the next session. >.<
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KidneysR4Wimps
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« Reply #7 on: May 22, 2015, 09:32:27 PM »
Thank you all for your warm welcome!

While some may call it cheating, I chose to have gastric bypass surgery to lose the weight. I honestly didn't have time to do it on my own since my goal was to stay off of dialysis as long as possible.
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Just call me MJ!
Darthvadar
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« Reply #8 on: May 26, 2015, 11:23:42 AM »
Hello...  :welcomesign; to IHD...

Cheat all you like... Great that you've done so well... Hope D is uneventful for you...

God bless...

Darth... Moderator...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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