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Author Topic: Hanging on by a thread  (Read 18578 times)
Angiepkd
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« Reply #75 on: May 05, 2015, 02:57:52 PM »
Best of luck kk!  You are an inspiration to all of us.  You are so strong to have been through so much yet still keep pushing forward.  Sending positive thoughts to the transplant team you are working with and you!   :thumbup;
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
PrimeTimer
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« Reply #76 on: May 06, 2015, 01:35:01 AM »
Good luck with getting listed for a transplant! That sounds hopeful. Maybe that spreadsheet of yours and the writing helped to put some fight back into you. And of course, the Barry Manilow CD's probably act as positive affirmations. Here's to producing more endorphins!  :beer1;
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Michael Murphy
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« Reply #77 on: May 06, 2015, 06:12:55 AM »
Thoughts and prayers that you win the transplant lottery and have a long and happy life!
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