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Author Topic: Getting too old for this  (Read 2232 times)
Bayushi
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« on: May 19, 2015, 05:38:46 PM »
Good afternoon, IHD!

I'm Walt, otherwise known online as Bayushi.

I was diagnosed with ADPKD (Autosomal Dominant Polycystic Kidney Disease) in November of 2012, and my Nephrologist was able to help me keep things under control until last year (15 months after having a fistula placed). I started hemodialysis at the local (now a town over) Fresenius clinic in June of 2014 and have missed but one day since. I medicate with Phosrenol for high phosphorus (disgusting chalky things that those tablets are!) and have to avoid potassium as well. Thankfully, I do not have a fluid restriction at this time nor does sodium seem to be presenting an issue.

I was already permanently disabled courtesy of a ruptured cerebral aneurysm in 2002 (aneurysms are apparently a 'side effect' of PKD) and had a second brain aneurysm located and "coiled" in January of this year.

I am a 38-year old man with no past history of kidney problems, nor a family history of such. I am a former IT professional with both secondary education and trade schooling in the field. Nowadays, my life involves dialysis (thrice weekly), playing online multiplayer games to keep myself from being an anti-social shutin and walking about the local area (if I need groceries, I gotta walk. The after-effects of the brain aneurysm have left me permanently incapable of driving).
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Rerun
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Going through life tied to a chair!
« Reply #1 on: May 20, 2015, 02:40:22 PM »
Hello Bayushi. and welcome to IHD.  I'm so glad you joined us.  This site will help you a lot as things progress.  By that I mean once you start dialysis.  Lots to read here. 

Welcome - Rerun, Admin.

  :welcomesign;
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cassandra
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When all else fails run in circles, shout loudly
« Reply #2 on: May 20, 2015, 04:32:23 PM »
Welcome to the site Walt

       :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Rerun
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Going through life tied to a chair!
« Reply #3 on: May 21, 2015, 01:32:09 AM »
 :bump;
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Darthvadar
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« Reply #4 on: May 26, 2015, 11:25:15 AM »
Hi Walt...

Good to see you, and thanks for joining us... Hope to see a lot of you....

God bless...

Darth... Moderator...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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