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Author Topic: Hemodialysis and 16 years...  (Read 5133 times)
kitkatz
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« on: November 03, 2014, 07:14:06 PM »
1998  November 2, I was introduced to my first in center dialysis treatment.
16 years later, last nigh,t I had my 2496th dialysis treatment (give or take a few hospital stays).

Surprises me when I think about all of these years.
It is still not easy.  Last night my pressure was high, tummy was acting up, one needle hit a bad spot and hit a nerve.
I ended up in tears.
 
What a way to celebrate 16 years of doing in center hemodialysis.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
PrimeTimer
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« Reply #1 on: November 04, 2014, 12:16:42 AM »
Happy Sweet 16!! You've been on active combat duty for a lot of years battling this thing called dialysis so you certainly deserve to celebrate! And with two daughters both married, who knows, maybe there will be little ones coming along that can spoil you...with foot rubs, back rubs, fetching this, fetching that for gramma...heh heh..the possibilities are endless! And oh! There's no retirement allowed but you'll serve honorably for a lifetime with a lot more dignity than most. Oh, wait a minute...what did you say??? Oh. Well yeah, I know what I can do with all this bs but I just really wanted to say congrats on your 16th!
ta-ta now.. :beer1;
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
iolaire
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« Reply #2 on: November 04, 2014, 05:40:13 AM »
Congratulations!

It’s by reading stories like yours that I feel good about the whole dialysis situation.  I look forward to a transplant that will last a long time. But if for whatever reason the transplant is not a long term solution it’s great to know that dialysis is THE long term kidney replacement.  I’m sure it’s tough to settle down to live on dialysis for the rest of your life but it beats the alternative…
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
del
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del and willowtreewren meet
« Reply #3 on: November 04, 2014, 05:46:07 AM »
 Dialysis is a long, hard journey that has no sick days or vacations from it allowed.  Your life is probably a little bit less stressful since you retired (I will not say dialysis is less stressful because it never is) .  Even though dialysis is very difficult I bet you are still happy to be able to spend time with your hubby and your family. Believe me I know because my hubby is working on 18 years of D and he has not had any other health issues.  Everyday on dialysis seems to be a struggle because you never know what to expect.  Sites like this are so helpful to patients and caregivers.   :cuddle; to you for doing all those treatments.  I hope you next treatment is better than this one. :cuddle;
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Don't take your organs to heaven.  Heaven knows we need them here.
del
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del and willowtreewren meet
« Reply #4 on: November 04, 2014, 05:48:23 AM »
Quote from: iolaire on November 04, 2014, 05:40:13 AM
Congratulations!

It’s by reading stories like yours that I feel good about the whole dialysis situation.  I look forward to a transplant that will last a long time. But if for whatever reason the transplant is not a long term solution it’s great to know that dialysis is THE long term kidney replacement.  I’m sure it’s tough to settle down to live on dialysis for the rest of your life but it beats the alternative…

It sure does beat the alternative!!!
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Don't take your organs to heaven.  Heaven knows we need them here.
Michael Murphy
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« Reply #5 on: November 04, 2014, 06:58:46 AM »
It is stories like yours of 16 years of struggle with this curse/blessing that show me that this is a doable course.  After 16 years you remain a positive influence on the people who read your posts.  This site and its people are what gives me hope for my future.  You shine a beacon of hope that the dialysis sessions are not all that life can be.  Thank you from Michael Murphy
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MooseMom
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« Reply #6 on: November 04, 2014, 07:51:12 AM »
Kitkatz, you know what really inspires me about your posts?  You don't sugarcoat anything.  You don't write about false bravery and imaginary strength.  You don't hesitate to tell us that sometimes you still, even after 16 years, cry and rage and yell at the world.  I admire your honesty. 
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Ritamghosh
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share the pain gain strength
« Reply #7 on: November 04, 2014, 08:39:31 AM »
Its really helpful and its give us strength to fight for live....Thank you and may God give u strength...and we all with u till end... :beer1;
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God give us strength to fight the battle and save the "son of God"
jeannea
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« Reply #8 on: November 04, 2014, 08:58:37 AM »
You're impressive. I don't know if I could make it that long.
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kitkatz
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« Reply #9 on: November 04, 2014, 09:16:39 AM »
Thank you al for your kind responses.

I don't know if it is so much bravery or chutzpah, most days I think I am just to stupid to know any better, so I just keep putting one foot in front of the other.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Michael Murphy
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« Reply #10 on: November 04, 2014, 10:42:47 AM »
Putting one foot in front of the other on a difficult path is my definition of Courage.
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Ritamghosh
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share the pain gain strength
« Reply #11 on: November 04, 2014, 10:35:00 PM »
Yes it is difficult..but some one has to do it in the right way so the followers can believe him and take his path.....So i think kitkatz show us the right way..
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God give us strength to fight the battle and save the "son of God"
cassandra
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When all else fails run in circles, shout loudly
« Reply #12 on: November 05, 2014, 08:32:09 AM »


         :cuddle;            And   :beer1;

Lots of love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #13 on: November 05, 2014, 08:48:40 AM »
 :2thumbsup; You're amazing, strong, resilient.
I know it hasn't been easy but the one thing I love is your sense of humor!
I wish you many more years of good health!
 :-* :-* :-*
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
cdwbrooklyn
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« Reply #14 on: November 05, 2014, 08:58:08 AM »
Stay strong Kitkatz as you continue to inspire me!    :yahoo;
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
willowtreewren
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My two beautifull granddaughters

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« Reply #15 on: November 05, 2014, 12:33:35 PM »
You are an inspiration to us ALL!

 :waving;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
BobN
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« Reply #16 on: November 06, 2014, 09:06:41 AM »
kk, it takes toughness and determination to be on the Big D for that long.

Keep on truckin'.  You are truly an inspiration.
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www.bobnortham.com
Author of The ABC's of the Big D: My Life on Dialysis
Bob's Prescription for Living With Dialysis:
Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid.
Stay Active - Find a Form of Exercise You Like and DO IT!!
Laugh Every Chance You Get.
Sugarlump
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10 years on and off dialysis
« Reply #17 on: November 13, 2014, 07:40:41 AM »
My career has only been for 10 years to your 16 but I do believe a bit of bloody mindedness keeps us going  8)
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
OlManRivah
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« Reply #18 on: November 25, 2014, 08:10:13 AM »
 :bow; We have a fellow in our Center who has been on for 37 (yep 37) years.  Simply amazing.  And he leaves his treatment and goes to work.  So, don't get depressed life goes on. . .
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Country boys can survive!
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