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Author Topic: New Kidney!!!!!!!!! Yeah  (Read 4256 times)
kit78
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« on: May 09, 2014, 07:54:37 AM »
I was so shocked on March 26 at 5:30 am when I got a call for a new kidney and again, was a 6 out of 6 match!   :bow;  Feeling so blessed!  My polycystic kidneys were so huge they had to remove them both to place the new one in, which is in my peritoneal cavity instead of the usual way on the outside of it.  It was done on March 27.  I was in for 13 days and have been running back and forth to Chicago ever since for Plasmapheresis treatments and blood work.  I am high risk and today have a nurse coming for 6 - 8 hrs. to give me an IVIG treatment to stop Antibodies from attacking my new kidney. Doing PT at home as well.  My creatinine level went up a bit so they gave me some injections to make the antibodies go after those instead of the kidney but if that doesn't work they are going to remove my spleen!  They also said sometimes they like to tie off the fistula because it's not good to have so much blood flow like that going to the heart.  Just not healthy! So we shall see what happens next.  I am still very weak and shaky, but the exercises seem to help with it. Hoping I will be able to break through it all.  I do believe it is the anti-rejection drug that is time released called Astagraph. It does cause weakness but will stick with it.  Losing weight as well which is a blessing as well.  Many blessings to you all in getting a kidney and feeling well.
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Inherited PKD from my Mother who died at age 52
2001 Transplant - Blessed...only on list for 4 days
2012 Lost Transplant and had Pneumonia
2012 June - started Dialysis
2012 December -  Back on Transplant list
Deanne
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« Reply #1 on: May 09, 2014, 08:04:35 AM »
Congratulations!!!!  :yahoo;
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
cdwbrooklyn
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Positive Thoughts equal Positive Energy
« Reply #2 on: May 09, 2014, 08:37:36 AM »
Congrats!!! May God bless your new kidney that everything will work out well.    :cheer:
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
Ninanna
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« Reply #3 on: May 09, 2014, 12:00:09 PM »
Horray!  Such good news!!
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Spring 2006 - Diagnosed with IgA nephropathy
June 2013 - Listed on transplant list
Feb 4th 2014 - Kidney and bone marrow tx (both from my mother) as part of a clinical trial at Hopkins
MooseMom
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« Reply #4 on: May 09, 2014, 02:23:34 PM »
Congrats and best of luck!  I hope you are feeling much better soon!  You've really been through a lot, and I'm hoping your reward will be a smoothly functioning kidney very soon!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
SooMK
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« Reply #5 on: May 09, 2014, 03:06:24 PM »
Congrats! Wishing you smooth sailing.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
kit78
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« Reply #6 on: May 10, 2014, 07:10:58 AM »
Thank you and congrats to all of you who have received the gift from God.
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Inherited PKD from my Mother who died at age 52
2001 Transplant - Blessed...only on list for 4 days
2012 Lost Transplant and had Pneumonia
2012 June - started Dialysis
2012 December -  Back on Transplant list
MommyChick
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Me & my precious Miracle !!!
« Reply #7 on: May 10, 2014, 08:53:59 AM »
Congratulations!!!  :cheer: Such exciting news!
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~ Hello All, My names Marna ~

- 1995 - 12 yrs old found out my kidneys were both failing
- 1996 - Dec. 3 I received my 1st kidney transplant at age 13, after 7/mths on the waiting list
- 2005 - In Aug. transplant failed after 9.5 years, had to have a nephrectomy due to being very ill & massive hypertension
           - End of Aug. 1st time on dialysis
- 2006 - Had my fistula placed & ready to go
- 2010 - My little Miracle was born 6/mths into the pregnancy, weighing 2.4 lbs & 13.25 in long
          - Found out my PRA is 100% & I have antibodies that CAN'T be decreased
- 2013 - Oct. 2nd  *** I finally received my kidney!!! ***
          - Dec. 3rd I had 3.5 parathyroids removed, due to them interfering w/my new kidney.
Rerun
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Going through life tied to a chair!
« Reply #8 on: May 10, 2014, 02:17:11 PM »
What a blessing.  Prayers to your new kidney and to the family who saw through the fog of their own tragedy to give the gift.

If it was a 6/6 match why is it reacting so much?  I guess they really don't know.  God Bless!  May you have it for many many years.

              :pray;
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galvo
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« Reply #9 on: May 10, 2014, 09:53:02 PM »
Onya!
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Galvo
lainiepop
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« Reply #10 on: May 10, 2014, 11:57:26 PM »
Wonderful news xxx  :2thumbsup;
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
jeannea
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« Reply #11 on: May 11, 2014, 10:12:31 PM »
That's wonderful! I hope the treatments aren't too hard on you.
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BobN
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WWW
« Reply #12 on: May 14, 2014, 06:07:44 PM »
Congratulations!
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www.bobnortham.com
Author of The ABC's of the Big D: My Life on Dialysis
Bob's Prescription for Living With Dialysis:
Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid.
Stay Active - Find a Form of Exercise You Like and DO IT!!
Laugh Every Chance You Get.
cassandra
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When all else fails run in circles, shout loudly
« Reply #13 on: May 15, 2014, 01:51:47 PM »

Congrats Kit!!!!

     :yahoo;


Love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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