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lauri
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« on: March 14, 2014, 08:13:03 PM »
Hey! My name is Lauri, im 32, and I live in south Texas. When I was 19 I was diagnosed with an autoimmune disorder called Goodpastures Syndrome. I started dialysis in november of 2001 and received a transplant in June 2006. Last September that kidney failed and I began dialysis again and am waiting for my 2nd transplant. Im.having a harder time emotionally dealing with dialysis than last time. I started antianxiety meds for dialysis days. Itry to stay positive but like all of us, I have bad days too. I hope to get to meet some people who understand me. Thanks!
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Angiepkd
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« Reply #1 on: March 14, 2014, 08:30:57 PM »
 :welcomesign; Lauri!  So sorry you are back on D. I can only imagine how difficult that must be after transplant.  You will find lots of help here!  I always find someone on IHD has experienced what I am going through, and knowing you are not alone is wonderful. Search the boards and see what you find or post a new thread with your questions.  I cannot thank the members here enough for their help and encouragement. Best of luck to you as you repeat this process. You will get through it, and hopefully have your next transplant soon!
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
lauri
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« Reply #2 on: March 14, 2014, 08:51:10 PM »
Thank you angie. I'm so glad I found this site. I feel like I annoy my friends and family. Congratulations on your new fat kidney.
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Darthvadar
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« Reply #3 on: March 15, 2014, 03:19:50 AM »
Hi Laurie....

You're very  :welcomesign; to IHD....

Visit and post often... We're always here for each other....

Look forward to seeing more of you....

Darth, Moderator...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Fox_nc
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« Reply #4 on: March 15, 2014, 10:19:06 AM »
Heya! What part of south Texas? I'm from Dallas but have family down around Beaumont.

Hate to hear you're having a rough time. I have to say my second round of dialysis hit me harder too. When I had my first transplant I was warned that it would not last forever, but when I found myself sitting in a dialysis clinic again, I lost it. Big 'ol hissy fit - I think I scared them, lol.  Trust me, it does get easier, and this community is a great support. If you need anything, just holler.

 :welcomesign;
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Being normal is not necessarily a virtue. It rather denotes a lack of courage. -- from the movie Practical Magic
lauri
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« Reply #5 on: March 20, 2014, 01:41:47 PM »
Quote from: Fox_nc on March 15, 2014, 10:19:06 AM
Heya! What part of south Texas? I'm from Dallas but have family down around Beaumont.

Hate to hear you're having a rough time. I have to say my second round of dialysis hit me harder too. When I had my first transplant I was warned that it would not last forever, but when I found myself sitting in a dialysis clinic again, I lost it. Big 'ol hissy fit - I think I scared them, lol.  Trust me, it does get easier, and this community is a great support. If you need anything, just holler.

 :welcomesign;


Yeah it's been emotionally harder...very much so. I haven't had a breakdown yet but I feel myself getting close. Physically im regressing back to where I was the first time around. I expected that. Thank you for being so nice to me
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Maggie and Jeff
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Life as a Pincushion

WWW
« Reply #6 on: March 20, 2014, 01:54:00 PM »
 :welcomesign; To the forum
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The LORD is my light and my salvation--so why should I be afraid? The LORD is my fortress, protecting me from danger, so why should I tremble?

Jeff is the needle pusher Maggie is the pincushion.
Fox_nc
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« Reply #7 on: March 20, 2014, 05:28:24 PM »
No problem! We all need others who know what it's like to be where we are - that's why we're here! Please feel free to PM me if there's anything I can do. And if you need to have a breakdown, take Disney's advice and " Let It Go!" You'll feel better after yelling for a bit.  :boxing;
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Being normal is not necessarily a virtue. It rather denotes a lack of courage. -- from the movie Practical Magic
shayron1982
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1 Corinthians 13
« Reply #8 on: March 20, 2014, 07:33:33 PM »
 :flower;
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~Sharon~
Diagnosed with FSGS 2003
AV Fistula upper right arm 2007
On transplant list @ MUSC 2008
PD Cath placed 2013
Started PD at home 2014
kristina
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« Reply #9 on: March 22, 2014, 02:38:17 PM »
Hello Laurie..., and welcome to IHD...

I also suffer from an autoimmune "disorder" in my case it is Systemic Lupus and ESRF...

... which also made my kidneys suffer during various flare-ups and now I am in pre-dialysis ESRF.... with an uncertain future...

I do hope you find lots of answers here on IHD and I wish you good luck...

Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
dublin
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« Reply #10 on: March 22, 2014, 02:48:32 PM »
Quote from: lauri on March 14, 2014, 08:13:03 PM
Hey! My name is Lauri, im 32, and I live in south Texas. When I was 19 I was diagnosed with an autoimmune disorder called Goodpastures Syndrome. I started dialysis in november of 2001 and received a transplant in June 2006. Last September that kidney failed and I began dialysis again and am waiting for my 2nd transplant. Im.having a harder time emotionally dealing with dialysis than last time. I started antianxiety meds for dialysis days. Itry to stay positive but like all of us, I have bad days too. I hope to get to meet some people who understand me. Thanks!
Hi Lauri and welcome you will like it here these are good people with good answers aswell hope you are feeling well  :2thumbsup; :bandance;
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