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Author Topic: Greetings my fellow compatriots.  (Read 3346 times)
rayray73
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The creative adult is the child who survived.
« on: March 08, 2014, 04:48:51 PM »
My name is Raymond and I've been diagnosed with chronic kidney disease at the age of 20. It was on January 2011. The joint on my left big toe was swollen, which eventually lead to my entire foot in pain. It was too painful to even put on socks. One evening, a doctor came to my house at about 10 pm randomly, to do further examination after recent blood tests. He told me I needed to be admitted into the general hospital, so I packed my bags then went there.

After 5 days of being in the hospital, I was told by another doctor that I have chronic kidney disease. I don't think he even knows the reason why. I'm the first person ever from both side of the family to have kidney problems. After I received the news, I thought my doom was coming.....but yeah, that's a cliff note of me.
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SooMK
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« Reply #1 on: March 08, 2014, 05:23:55 PM »
Oh Rayray, this is so tough. I'm glad you have found IHD. Welcome. I know you will get good info here.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Bambino_Bear
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WWW
« Reply #2 on: March 08, 2014, 06:44:28 PM »
 :welcomesign; Raymond. 
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I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
Jean
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« Reply #3 on: March 09, 2014, 12:28:15 AM »
 :welcomesign;  to IHD Ray.
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One day at a time, thats all I can do.
Sugarlump
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10 years on and off dialysis
« Reply #4 on: March 09, 2014, 01:26:27 AM »
Hello Ray and welcome to a touch of sanity on IHD ... for when the times get tough, this is the place to rant or ask for help or laugh even  :welcomesign;
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Darthvadar
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« Reply #5 on: March 09, 2014, 01:34:47 AM »
Hello Raymond, and  :welcomesign; to IHD....

Visit and post often... We're a very supportive group, and we really 'get it'....

Darth, Moderator...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
kristina
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« Reply #6 on: March 22, 2014, 03:01:48 PM »
Hello Raymond...
I am not surprised that you thought it was all doom and gloom when you were told of your kidney condition...

I felt exactly the same when I was told in 1971 that I am in ESRF at the age of 17, after I was brought to hospital in a come because of my ESRF....

... fortunately my "two little fighters" are still with me all these years later..... admittedly I took great care of my "two little fighters"....

... so they are still with me.... hopefully for a little longer....

I just say this because it may not all be doom and gloom..... there may be a chance that your two little fighters may pick up again....

1best wishes and food luck  from Kristina...
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
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