Watch out life changes in a second I almost died

[amycdaa]

Hi all,

So recently I had posted under the subject of a shoulder to cry on and I have a very important warning. At the time i was on the fence about changing nephrologist and man i wish I had listened to my gut. My fluid overload was very high and he told me it was fat. It wasn't my lungs were filing with fluid and very fast. If it wasn't for my PCP I would not be here. I had pneumonia and was drowning. I Remember nothing after being admitted to hospital. I was intubated and put in a a medically induced coma. It was like that for a week and 1/2, Since waking up a few days ago it has been hard. I am 41 I cant make it to mailbox yet but i will. I have a new nephrologist and am very convinced that if I stayed with old Dr. I would be dead.

Please please fight for yourself when you know something is wrong.

Just wanted to give y'all a warning.






sp mod Cas

[cassandra]

I'm glad you lived to tell the tale, and hope you recover soon.

And thanx for the warning, I suppose we have to be kept reminded.

Love, Cas

[Charlie B53]

Do you mean your Nephrologist, your Kidney Dr?

Neurology is the study of the brain and nervous system.

Fluid overload is very dangerous.  Besides filling the lungs, slowly drowning, the heart sac fills putting pressure on the heart making it unable to fully fill reducing the amount of blood pumped with every beat.  The pulse speeds up terribly fast in attempt to provide enough circulation until it becomes exhausted and fails completely.

You are VERY fortunate your Primary notice your symptoms and took immediate action.

I had an experience similar yet no where near as severe.   A new heart med caused me to gain massive water.  I ballooned up dispite my large doses of lasix.  I recognized the beginnings and stopped taking the med, called my Dr got an appt.  She changed the med and it took almost a week but it worked out fine.  I was fortunate and didn't need to be admitted.

You had a scary close call.

[LorinnPKD]

Wow.  I'm speechless.  I am so sorry you had to go through that, amycdaa.

Right before I was diagnosed, I had a UTI turn into a kidney infection because a PA insisted I should drink cranberry juice(!) instead prescribing of the antibiotics I insisted on, even though she totally knew I had a family history of a genetic kidney disease/ESRD.  I ended up in the hospital for days.  I thought that was pretty bad, but obviously it can be so much worse.  I am so glad you went to your PCP for help.

Wishing you a steady recovery and more strength every day.

[jmintuck]

   wataneph the old one was. How dang incompetent. That just makes me rage endlessly. I am always petrified of a smart alec doing something or other like this. I already had one HUGE smart alec with a different med that nearly did me in. Thank god for the chemist who caught it and told me what to do differently, therefore resolving the bungle-up before it could kill me.

[LoneHighway]

This thread is old, but from what you wrote I'd say you have a good case for medical malpractice.