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Author Topic: Tributes to Silverhead (Tom)  (Read 8391 times)
looneytunes
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Wishin' I was Fishin'
« on: September 19, 2012, 08:14:11 PM »
I am not sure how many IHD folks remember Tom and Sharon.  Tom's daughter contacted me a few weeks ago when she found a message from me in his email.  Tom passed away Sept 7th, 2011 following his surgery in August, 2011. 

Tom, you were a source of comfort to me so many times.  Your willingness to share, to help in any way you could, encourage us, and befriend others was your special talent.  I have missed you and think of you often.  Thank you, my friend, and may you eternally rest in peace. 
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"The key to being patient is having something to do in the meantime" AU
Rerun
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Going through life tied to a chair!
« Reply #1 on: September 19, 2012, 10:19:45 PM »
   :grouphug;   :pray;
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Chris
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« Reply #2 on: September 19, 2012, 10:47:47 PM »
I remember the name, sorry to hear of the news.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Darthvadar
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« Reply #3 on: September 20, 2012, 12:58:56 AM »
I remember him very well... We had some good chats...

May his gentle soul rest in peace...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #4 on: September 20, 2012, 01:42:41 AM »
He was a great support for his wife Sharon, and did her dialysis for her for over 3 years, I think, until she decided to quit, and she passed away in Sept. 2010. So sad Tom didn't make it - he was optimistic about his surgery. Well, I believe they are together now, no more worries.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
natnnnat
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« Reply #5 on: September 20, 2012, 04:07:04 AM »
I'm very sorry to hear this sad news, I like to read his posts very much.  I already missed him, now I know why. 
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
monrein
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Might as well smile
« Reply #6 on: September 20, 2012, 06:02:03 AM »
I remember him and am very sorry to hear tis news.  Rest in peace Tom.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willowtreewren
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My two beautifull granddaughters

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« Reply #7 on: September 20, 2012, 06:28:55 AM »
Oh, I'm so sorry to hear this.

I remember him and his stories of NxStage "adventures" with his wife. I had thought that he had moved on from IHD after she died.

Thank you for letting us know.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
billybags
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« Reply #8 on: September 23, 2012, 10:50:12 AM »
I am so sorry it has took us so long to find out what happened to Tom. So sad.
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boswife
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us and fam easter 2013
« Reply #9 on: September 23, 2012, 07:57:57 PM »
Im so sad at this news.  I had hoped he'ed come back to tell us of his new strength, but in heart, i thought this may be what had happened.  I loved that man, and his devotion to his beloved wife.  He helped give me confidence to struggle through my struggles with nxStage and always loved reading of his life.  I hoped he'ed be around along time to share his life with us.  Thank you for sharing this with us.. May his soul rest in peace with God, and his Sharon.   
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Jean
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« Reply #10 on: September 23, 2012, 11:34:25 PM »
Thanks for letting us know. Tom was an awesome guy, I was always amazed at how well he took care of his wife. He was so good to talk to also. I just thought he had wandered away from us. Sorry to hear of this.
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One day at a time, thats all I can do.
Sluff
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« Reply #11 on: September 26, 2012, 04:39:37 AM »
Thanks Loony, I had the chance to talk to Tom on the phone once, he was a great caregiver for Sharon. They are together that's for sure. R.I.P. Tom.
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