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eboli
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« on: January 24, 2014, 04:10:34 AM »

Hello to everyone!  Adjusting to the reality of hemodialysis in the near future, and feeling anxious and frightened about what that means for me and my family.  I am diabetic as well as physically disabled due to after effects of several surgeries on both of my feet.  I have had to accept a lot of life changes, but this time I am really struggling.  It seems to me this might be a good place to relate.... :waving; 
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Poppylicious
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« Reply #1 on: January 24, 2014, 06:47:15 AM »

Hi eboli, and  :welcomesign;!

We're a friendly and supportive bunch of folk here (well, mostly  ;D) and you can usually find an answer of some sort to most of your queries.  Lean on us and we'll do our best to keep you from struggling too much.

Poppylicious, Moderator
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
MooseMom
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« Reply #2 on: January 24, 2014, 09:12:05 AM »

Welcome to our community!  You will indeed find a lot of support and information here.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
paris
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« Reply #3 on: January 24, 2014, 04:42:38 PM »

Welcome to IHD.  This is a great place for information and also for good support.  We don't get through this alone -- we lean on each other.  Looking forward to learning more about you.    :welcomesign; 


paris,Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
ToddB0130
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« Reply #4 on: January 24, 2014, 04:46:43 PM »

Welcome  !  This is the place to learn about your new 'normal' ......you have already coped with a lot.  You will learn to cope with D too.  Before I started dialysis, I was so freaked out, I started taking Celexa for anxiety .......... once I started and learned to handle the new 'adventure', I felt less/no anxiety and stopped taking the Celexa (hey,  one less pill everyday is a win !!!)

Good luck.
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No day but today
Angiepkd
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« Reply #5 on: January 24, 2014, 10:26:19 PM »

 :welcomesign; eboli!  I have been on home hemo for almost a year. I was so scared before I started, but found out it's not so bad when you get into a routine. I think the waiting and not knowing was awful. I feel much better than I did pre-D.  This site has helped me so much during this crazy journey. There is almost always someone who can relate to what you are going through. Search the boards for answers and post any questions you may have. There is always someone here to help. It sounds like you have been through a lot!  Dialysis is scarier to think about than to actually do.  I was sick thinking of needles and sitting for hours in that chair. When I had my first treatment it wasn't painful or horrible at all.  Sometimes the thought of doing something is worse than doing it!  Best of luck to you and hope to learn more about your story!  :cuddle;
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
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