Hey cdwbrooklyn,
NZ is pretty stuffed in that way. Karla has been trying for years to get their train of thought and I'm a newbie in all this but at the end of the day, it's my situation also. I fully support Karla in her endeavor.
And it's as Karla says, there is no understanding and there is only ignorance. Especially when you have a famous Rugby player who is now on dialysis saying how awful it is
That annoys me. People see his story and think it's the same for everyone. I know SOME situations are bad, but he doesn't acknowledge that it's not that bad for many more people.
Employers only see what he says. They only know what he says. Then they meet people like Karla and I and it confuses them even more because we don't look 'sick'. To people who don't understand: Dialysis = sick.
Of course, I'm not telling you anything you don't already know
CYFS have the same sort of thought as the general public. Dialysis is a bad thing. But they need to see that our choice to do dialysis is our choice to live. We're not unstable emotionally (unless we have bad days), and we are WANTING to live. Just wish they would see that dialysis is keeping us alive, not killing us.
Argh