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Author Topic: Waiting to hear  (Read 4946 times)
Fatkidney
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« on: August 23, 2013, 08:05:52 AM »
I got a call from my coordinator.  They found a perfect match kidney for me.  It's a 50/50 chance I'll get it.  Just waiting for her to call back one way or the other.  This is so exciting I don't even know what to think.  I'm still pre-dialysis, but my GFR is at 10 so I'm pretty limited on time.  This would be so awesome if it happens today.  A perfect match, my coordinator said it would be like winning the kidney lottery.
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June 2004 diagnosed with PKD
April 2012 Listed for transplant
November 2012 3rd and finally successful fistula placement, left basilic vein. Yay, it worked!
GFR down to 10.
Deceased donor transplant August 24, 2013.  Perfect match. So far so good!
lainiepop
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« Reply #1 on: August 23, 2013, 11:50:18 AM »
Ohh wow hoping it happens for u today!!
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
Rerun
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Going through life tied to a chair!
« Reply #2 on: August 23, 2013, 12:07:11 PM »
I hope you get it.

         :bow;    :cuddle; 
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Fatkidney
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« Reply #3 on: August 23, 2013, 05:45:25 PM »
Thank you! I'm just chilling in the hospital bed. The surgery is supposed to happen at around 7 am.
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June 2004 diagnosed with PKD
April 2012 Listed for transplant
November 2012 3rd and finally successful fistula placement, left basilic vein. Yay, it worked!
GFR down to 10.
Deceased donor transplant August 24, 2013.  Perfect match. So far so good!
justme15
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« Reply #4 on: August 23, 2013, 05:58:24 PM »
woo hoo!!!
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willowtreewren
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My two beautifull granddaughters

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« Reply #5 on: August 23, 2013, 06:52:17 PM »
 :2thumbsup; :2thumbsup; :2thumbsup;

Wonderful!
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Angiepkd
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« Reply #6 on: August 23, 2013, 07:43:38 PM »
That is awesome news! Congratulations and hope everything goes smoothly for you!   :clap;
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
UkrainianTracksuit
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« Reply #7 on: August 23, 2013, 07:47:28 PM »
Congratulations! Best wishes and smooth sailing ahead.   :2thumbsup;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #8 on: August 23, 2013, 09:55:18 PM »
 :2thumbsup; :2thumbsup; :2thumbsup; GOOD LUCK!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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Going through life tied to a chair!
« Reply #9 on: August 24, 2013, 01:38:51 AM »
It must have happened by now.  Yippee 
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Fatkidney
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« Reply #10 on: August 24, 2013, 02:17:04 PM »
I got my BEAUTIFUL new kidney, named PeeWee, this morning. Working like a champ already. Feeling super blessed today.  :yahoo;
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June 2004 diagnosed with PKD
April 2012 Listed for transplant
November 2012 3rd and finally successful fistula placement, left basilic vein. Yay, it worked!
GFR down to 10.
Deceased donor transplant August 24, 2013.  Perfect match. So far so good!
willowtreewren
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Gender: Female
Posts: 6928


My two beautifull granddaughters

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« Reply #11 on: August 24, 2013, 02:51:20 PM »
Woo Hoo!     :2thumbsup; :clap; :yahoo;

 :bandance; :bandance; :flower; :cheer:

Wonderful, wonderful!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Roxy
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« Reply #12 on: August 24, 2013, 08:48:34 PM »
That's FANTASTIC news! Congrats!!  :yahoo;   :bandance;
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Jean
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« Reply #13 on: August 25, 2013, 01:20:13 AM »
Wonderful News!!!! :flower;  Hope it continues to work well for you.
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One day at a time, thats all I can do.
lainiepop
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« Reply #14 on: August 25, 2013, 09:40:45 AM »
Fantastic!!!! :bandance;
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
cassandra
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Posts: 4974


When all else fails run in circles, shout loudly
« Reply #15 on: August 25, 2013, 10:00:54 AM »
Fantastic !

     :flower;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Angiepkd
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« Reply #16 on: August 25, 2013, 07:14:04 PM »
Hooray and congrats!!!  :2thumbsup;  :yahoo;  :beer1;  :clap;
Logged
PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
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